We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
  • About Me

    Image of shazzaS

    shazzaS

    Female, 51
    Tauranga, NZL
    Member since July 14, 2007

    • About Me

      I am 51 years old and have had narcolepsy for the last 18 years. I have a very understanding husband, 2 grown children and 2 fantastically gorgeous grandchildren. I work as a receptionist in a busy hotel. I love my job, but find I am exhausted by the time I get home from work. I want and need more energy to keep up with my grandies.

      I am 51 years old and have had narcolepsy for the last 18 years. I have a very understanding husband, 2 grown children and 2 fantastically gorgeous grandchildren. I work as a receptionist in a busy hotel. I love my job, but find I am exhausted by the time I get home from work. I want and need more energy to keep up with my grandies.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    shazzaS hasn’t written any journal entries yet.
  • Hugbook

    Give shazzaS a hug



    • Superhero Status

      From funtabulous November 2

      Hey gal did you get my new email addy?

    • Kiss

      From vonnyzzz September 13

      not forget ya x

    • Present

      From vonnyzzz July 12

      hi am feeling better thanks it just gets to much sometimes, but am back out fighting it lol love from me xxxx and hugs

    • Celebration

      From cheri1216 July 5

      Thank you for your kind words on my journal. There are times I wish I had followed my dream to write short stories. But alas those days are gone. :-)

    • Thumbs Up

      From funtabulous July 3

      Yep another kiwi, I hear you about the support over here, it is not really up there is it lol. I was supposed to be a doco made here once as i have severe cataplexy but they had budget problems and never made it down here.

      I'm unable to work at all as i have massive cataplexy attacks and get sick so often. But I try to keep busy and would much rather be working, I try every year to do something new to prove that i can work - so far N has proved me wrong.

      I contacted the N support group when I first got diagnosed, they said they had trouble getting people interested and never really heard anything else. The guy who I talked to said most of the members were over 70 so I gave it a miss.

      Now do tell me what your worst part of N is, by that i mean the funniest. Mine is hard to pick, the cataplexy attacks in shops is funny as with people running round going 'OMG should i call an ambulance, are you alright" when i can't do a damn thing to even answer them.
      OR
      the automatic response i have when asleep to answer the ringing phone and apparently make appointments that i never keep being that I was never awake, and yep it happens often lmao

    Read Hugbook

  • Support Groups

    • Close Narcolepsy

      Diagnosed with Narcolepsy 16 years ago. Diagnosis was very quick as only got any symtoms approx 6 months prior

      Treatments

      Ritalin Somewhat Helpful
      Finding ritalin OK, but haven't tried anything else to compare....... Now taking Rubifen, the generic of ritalin. Doesn't work as good as the Ritalin, but cheaper inb NZ
  • Groups

  • Friends


Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil