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harding 
WELL IT'S BEEN A WHILE SINCE MY LAST POST, NOT MUCH HAS CHANGED WHICH IS GOOD NEWS. I'M SURE ALL OF US HAVE OUR GOOD/BAD DAYS BUT SINCE MY LAST POST WHEN THE DR. TOLD ME SOME DEPRESSING NEWS I HAVE NOT NOTICED ANY DECLINE IN MY DAILY LIFE. MONDAY 9/24 I'M GOING TO A DIFFERENT DR., I KNOW YOU THINK I'M JUST SHOPPING FOR ONE THAT WILL TELL ME GOOD THINGS. NOT TRUE, I FOLLOW MY REPORTS, PFT, CATSCAN,ETC. CLOSELY AND HAVE KINDA BECOME KNOWLEDGEABLE ABOUT THIS CONDITION, I PERSONALLY THINK THE PREVIOUS DR GAVE ME BAD NEWS WITHOUT WANTING A 2ND PFT TEST TO SHOW THAT THIS TEST WAS PERHAPS AN ANOMALY. UP TO THAT TEST EVERYTHING WAS COMING OUT WITH LITTLE CHANGE SO I WANT A 2ND OPINION AND I'LL TAKE IT FROM THERE. "JACKTHECAT" IS LYING ON MY LAP ASLEEP AS I WRITE THIS, HE MAKES ME FEEL GOOD, A LITTLE LOVE GOES A LONG WAY. WILL POST AFTER SEEING NEW DR. HARDING
thanks to all for the hugs and comments. been kind of quiet lately with just me and "jackthecat" which is a good story in itself. when i was diagnosed with pf i read up on the internet and after realizing it really wasn't going to get any better i was all alone feeling blue, i went down to the humane society and asked them which shorthaired cat was the oldest they had in the cages. they introduced me to 9 yr old "jackthecat" and althoigh he was all black and scraggly looking noone else would take him and he was scheduled to be put down the next day. i took him and he's still with me, i figured at the time i didn't have too much time left and he was in the same boat. right now he waits for me, sleeps in my lap when i read or watch tv, he loves me and i love him, so anyway his companionship has really made me lighten up, remember though the cat has to be shorthaired and you need to brush him daily because of the fine cat hairs are not good to breathe. got to go, you all take care, harding
Comments
appt with gp yesterday, everything working fine except for the ipf. more upbeat than pulmonary dr. so i'm going to try to be more optimistic. got my mind wrapped around the problem and am trying to get away from the negative and live each day as best i can. we're all in the same boat aren't we? gettimng down is the worst part and sometimes it;'s just impossible to ignore the situation. i sure am using unusual words for dying aren't i, i guess it's only natural. take care all. harding
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I'm glad you had a good report with you GP yesterday. Yes we are in the same boat and it is impossible to ignore. I hope you have a great day and I'm praying for you my friend.
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In my job, we had a talk given recently from our campus chief of police on their policy for "active shooters." Part of his talk was about our odds of dying from this or that...at the top of the page, it read "Our odds of dying? 1 in 1." I'm hoping that it just keeps getting easier for all of us to put it in perspective. Glad you are getting there. I'm praying for you.
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Hello Harding, your doing just fine with the words that you are using..and im glad that you got an upbeat report. Yes we must prepare with paper work and all but once thats out of the way just try to enjoy every day that God has given you..and being at peace with him makes everything seem right..I thank God every morning for a new day and ask to see another sunrise when i go to sleep at night..because no one but him knows when our time will be..will keep you in my prayers. gail
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I,m new to any kind of support group, but, your post caught my eye, because my husband died 4yrs ago from the effects of agent orange. I know how cheated you must feel. I have just been diognosed with ipf and after battleing bipolar disorder for years It seems to be more than I can take right now. I won't depress you with any more neg. things. I do hope you find some peace and let me know how, I am at a lose right now. Good Luck!
Past Entries
| July 2007 |
Tuesday, 7/17
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Quite can be such a nice thing when you have a pet to share it with..My cats name is Sadie she was born a barn cat and very much has a mind of her own, she tells me when its time to turn out the lights and get more rest..You say that you do not have too much time left..i will keep you in my praters...gail
BrokenWings
Hi Harding..your journal made me cry. I know that feeling after you look on the internet and think to yourself that your life is over now because of the PF. I found out in '04 also and I went to the internet for information on it. I wish I hadn't after reading up on it! Does everyone die from this? I got mine from chemo treatments in 1983 and I have been short of breath since then, so it has been a long time for me with this breathing problem....But what I really wanted to say is that I feel for you and I wish you the best that you can get. You give your love to "jackthecat", more than likely he knows that you are ill and he will be there for you!
peony1
Hello Harding,
It's normal to feel that your life is over when you get a diagnosis like PF. But PF moves differently in different people. I have talked to a woman who recieved her diagnosis 20 years ago when the life expectancy was about 2 years. Go ahead and grieve what you have lost, but please don't sacrifice the life you have left. You've already done a wonderful thing for JacktheCat. ^_^ That is a wonderful story.
That's not to say that we should be in denial and not take care of the things we need to. That alone can bring a lot of peace.
May God Bless you with strength, hope and purpose.
\(^^)/
BreathlessInCa