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hopefulnaz 
today is my 14 month old daughter first day of physical and occupational therapy. she has Zellweger Syndrome doctors dont know how to treat her so i have taken the lead and i really dont know where to go. research on the internet is my only outlet. My daughters pediatrician is leaving now we have to hope her new doctor is as helpful as her last one. she has started to not eat as much baby food practically none. we need to do something about it. she is congested and has a slight cough leary about giving her medicine but do if bad. i just wish we could go outside and do things instead of staying home all the time. recent vacation not really maybe for everyone else but not me i took care of her while my family did activities in telluride colorado beautiful place lots of fun things to do and sights to see. may be next visit shell do better.
