Join Now
brenlee1960 
Well today hasn't been a good day for me. I'm sad and not feeling very good. The treatments sometimes make me sick. Then it reminds me of this awfull thing they call multiple myeloma. I really don't understand what I'm really in for. My doctor tells me I'm 90 percent envolved. Dosn't sound too good for me. I had a brand new grandson born in May and my daughter had the cord blood stored. My doctor tells me that I can't have a transplant until I can make my own blood. You see I went to another doctor who I thought I could trust with my health. Went to her for nearly two years. The first thing she said I needed done was a hysterectomy. This is why I needed blood transfusions. Well I had about 18 more transfusions after that. She still didn't know what was wrong with me. Good thing she went on vacation. I would of never probably found out what was wrong with me. I don't see her know more. I found a new doctor and she set me straight. I'm dong Valcade they say thats all they can do for me. Although my iga levels have went from 3191 to 693. I was told that mm patients usually don't see anything below 1000 iga. So I believe that all the prayers are working and god loves me.
Comments
I'm stuck in a rut right now and I can't seem to get out of it. I'm not feeling to good and all alone. My family has so many things going on right now I can't possibably burden them with my problems right now. I have all these thoughts in my head right now that I had them gone and they are coming back to me. I lost a unit of blood this last week not good news for me. I wanted no more blood transfusions and if I loose anymore blood I will have to have a transfusion again. I'm not trying to feel sorry for myself but I'm getting tired of being sick. I'm tired of the pain and nausea all the time. Well enough for right now. Till the next time.
brenlee1960
Sorry to hear that you are feeling down and out.Your family does care for you,you need them. I hope you do not have to go for another transfusion. I will keep you in my prayers and pray for the restoration of your health. God hears all our prayers and answers them according to his will. Take care and I do care about you
Your friend Susz
susz
I'm so sorry you're feeling badly. I'm glad your IgA levels are dropping. That's a good sign. Hang in there. Hopefully things will get better soon. I'm praying for you.
Your friend,
Cheryl
Cherri
I thank all of you for your prayers and hopes for me. I pray for you all as well. Things will get better I know. It takes time to ajust to all the new things happening in my life. It's hard for people to look at you as if sick when you don't look sick. I know it's hard for them to see the inside picture. Finding my new friends on Daily Strenght has been a inspiration to me and my family. Being able to talk with others about the illness and knowing they truely understand where your coming from has meant a great deal to me. I want to thank you all from the bottom of my heart. I pray everyday for you all.
brenlee1960
I hope things will start turning around for you soon. I know how hard it is to not feel well EVERY DAY! It really sucks! I hope you can get so that you don't need transfusions. Know that I think of you and pray for you.
Cheryl
Cherri
Hi Brenlee and big hugs to you. I am awaiting my doctors call to find out what my xrays of my entire body show. I think then they will be able to stage me. They think I am in early early stage because of what the bone marrow test and the other blood test say so I'm crossing my fingers. I have had constant pain in my left rib cage and it has been going on and off for about a year. So my guess is that I have something going on there. Just to move hurts and especially at night when I go to turn over in bed. But, I prayer for good days and good health for myself and everyone else who is in the situation. They say there is good new medicine out to treat this MM and put it in remission, I hope they're right. My son is 20 and he said to me today that I can't go anywhere because I have to be around for his children and I said when is that going to happen and he said for not another 10 yrs or so. So I promised him I'd do my best to be here for a very long time. I hope things get better for you too and that you can have something put a smile on your face and brighten your day. I know everyone in this forum is here and praying for us all too. Debbie
deblv
Keep fighting, you have to! I know there is no cure as such but you have to fight, I know you can, I have faith! xxxxx
redteardrops