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I am sorry Mood
Friday, March 7, 2008

I am sorry for not being out here for a while.  I have been very sick and going through alot.  Not really a good enough excuse for not returning letters and hugs back to those who care.  I have sent some hugs and notes to you all.  I will try to get on a little more.  Living with MM is not very easy.  I am coming out of remission now.  My Doctor is talking about a bone marrow transplant for me.  They want to take my own marrow and clean it up and put it back.  I will have to have this done in Detroit I quess.  I am a little nervous.  So if anyone has any advise out there for me let me know.  I don't even know what to exspect.  My doctor told me we would talk more next time I come in.  My proteins are going up and up and away again.  I though that I would stay in remission for along time............I was hoping for atleast twenty years,  reality though it wont ever happen for me that long.  Not unless there is a miracle waiting for us out there.  I hope research continues on this and progress is being made everyday.  They say that MM is on the rise in the United States.  In Michigan there is more cases reported each year than anywhere eles in the states.  That is kinda scarry if you live in Michigan, thats where I live.

                                                      Love you all very much,

                                                                              Brenda Lee

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  1. redteardrops

    Its ok, we dnt expect you to be here if you're ill!! I'm really happy you're back, i've missed you, I'm sure everyone else has as well!! I'm going to be here if you want to talk about anything, and I signed this protest in Britain about myeloma treatment, and I'm also carrying awareness things too! much love xxx


    redteardrops

Journal Entry for September 10, 2007 Mood
Monday, September 10, 2007
brenlee1960 brenlee1960: Hi to everyone, I'm sorry I havn't been writting lately. I have had a bad reaction to the chemo. Been very sick. Velcade is working, I am still making blood. The side effects are awfull for me though. Not sure if my doctor is going to continue the chemo or not yet. I'm so affraid if the chemo stops will I stop making my own blood again. I don't want to have no more blood transfusions. If anyone has any ideas for my doctor please let me know. I am in so much pain and it is getting very hard for me. I'm trying to stay and remain very positive, but I can't take the pain. So if anyone has and suggestions for me I am very open to it. I hope all my friends are doing well right now. I am praying for all of you as well. I think about all of you and I tell everyone that I have met some really nice and very important people on this sight. You all mean a great deal to me. I think I'm getting that stupid chemo brain stuff they talk about too. If anyone knows anything about it let me know please. I hope it goes away. Well I'm going to let you all go for now. Miss you all I send many prayers for you and wish you all a great day. See you soon. Love your friend Brenda Lee
 
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  1. susz

    Hi Brenda, I have been wondering how you are doing. Haven't heard from you for a long time. I'm so sorry that you have to go through such a hard time,but remember God is with you all the way,he will never leave you.I know during hard times sometimes it doesn't feel as if he is there,but I know he has helped me many difficult times. Hang in there. Prayers are going your way. Your friend Susan


    susz

Journal Entry for August 16, 2007 Mood
Thursday, August 16, 2007

See this charming young man.  He may be his grandma's little savior.  When he was born my daughter had his cord blood stored for me.  I may be able to have a transplant in a few months.  If we are a match.  So please pray for us.  Isn't he so cute and cuddly.  His name is Jordon Scott.  It's kinda funny how things work out in our life.  My daughter was on birth control when this little guy decided he wanted life.  Just a few months later I found out I was sick.  Someone very close to us told us about the stem cell transplant.  So contacted a company by the name of CBR Cord Blood Registry.  The name to trust.  We filled out the paper work they sent us a kit and when Jordon was born they took the blood from his cord and stored in a container and we called a courier and they came and picked it up.  Now it is somewhere out west.  If we are not a match I hope that someone out there that could be able to use it for a transplant for them selves.  So if you know anyone out there that is having a baby tell them to ask their doctor about storing the stem cell it is so important, you never know if your going to need it for a loved one or someone you may never know.  It helps many many diseases.  More than we all realize.  I'm still making blood on my own.  The Velcade is working for me.  Well I'll let you all go for now.  God bless everyone of you and may we all get better soon.  Love Your friend Brenda Lee

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  1. JennaE

    this is wonderful news. keep us posted. I will be thinking of you and praying for you.


    JennaE

  2. bloss

    good luck miracles can happen take care he is a little cutey.
    Julie


    bloss

  3. redteardrops

    I hope he is a match for you!mlots of love xxx


    redteardrops

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July 2007
Mood Saturday, 7/07

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