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About Me
nonibaby
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About Me
Mom to a 23 year old daughter with juvenile parkinson's. She is wheelchair bound, has very limited speech and can't do much of anything by herself. She's a very precious soul. I also have a 26 year old daughter who s healthy. I'm helping my husband take care of his 91 year old father who lives with us and has neuropathy with lots of pain in his legs and feet. My dad died at the age of 89 on Oct 20, 2008 from complications from adult onset parkinson's. I work full time outside the home. I'm exhausted!
Mom to a 23 year old daughter with juvenile parkinson's. She is wheelchair bound, has very limited speech and can't do much of anything by herself. She's a very precious soul. I also have a 26 year old daughter who s healthy. I'm helping my husband take care of his 91 year old father who lives with us and has neuropathy with lots of pain in his legs and feet. My dad died at the age of 89 on Oct 20, 2008 from complications from adult onset parkinson's. I work full time outside the home. I'm exhausted!
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Good Luck
I have MS my husband has distonia and other health problems His neurologist is still doing tests for what kind of Distonia it is
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Thank you so much for checking on me and reading my journal. Puppy finally has a name. It's Shiloh. I put up some new pictures if you want to see them. You haven't journaled in a while. How are you doing? How is Steph? What's been going on with you. I hope things have been peaceful for you friend. Thinking of you and sending big hugs! Please write when you can.
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Hi kiddo, thanks for thinking of me....been so busy cleaning out my mom's house to get it ready for sale, which means I'm away from home the better part of every week, so when I'm home, I'm movin! lol....mom is staying pretty stable these days, the dementia is creeping it's ugly head in here and there...but, for the most part, all is quiet (thank God for small blessings, right? HOw about you guys? I have to take some time to catch up on my friends here, I've been gone so long...how's Steph? I'll just hve to go and read some journals....take care, and thanks again, have a good week, xo
Get Well Soon!
i hope ur daughter feels better
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Moment of Peace
how are u
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Support Groups
Close Parkinson's Disease
Mom of a 22 year old daughter who was diagnosed with dystonia at age 8 and recently discovered through genetic testing that she has juvenile parkinsons.
Treatments
- Baclofen Somewhat Helpful
- Eliminated since Zanaflex is working better.
- Lexapro Working / Worked
- For depression
- Namenda Working / Worked
- For memory/brain function
- Neupro Patch Not Working
- She had a severe vomiting attack so took her off.
- Seroquel Working / Worked
- For hallucinations/anxiety/sleeping
- Sinemet Somewhat Helpful
- For PD -- 25/250 4x day
- Zanaflex Working / Worked
- Seems to be working so far
Close Caregivers
I have a 22 year old daughter who has been diagnosed with juvenile parkinsons. She has progressively deteriorated since age 8. She has been in a wheelchair since 2001, but was somewhat independent until June 2006. In June 2006 she took a turn for the worse. Since then she has been totally dependent. We must feed, bath and stimulate her body to move. Her speech is almost non-existent. Her body's normal tendency is to go in the fetal position with her head, legs, hands, etc.
Open Dystonia
My daughter was diagnosed with dystonia at age 8. She is now 22 and genetic testing indicates she has juvenile parkinsons. That's probably what her diagnosis has been all along.
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