I have been officially disabled since 2002 from MS. It has taken me years to come to terms with this illness, to even believe I have it. I've gone from NJ to SC, a stop in IA, to CA. I have most of the problems I used to help other people with. I thought I understood but I guess you don't get it until you get IT. AND BOY DO I GET IT.
I have been officially disabled since 2002 from MS. It has taken me years to come to terms with this illness, to even believe I have it. I've gone from NJ to SC, a stop in IA, to CA. I have most of the problems I used to help other people with. I thought I understood but I guess you don't get it until you get IT. AND BOY DO I GET IT.
I love traveling the USA - the world. MS will not stop me. These days the closest I come to my Bliss is in nature. The beauty of the world. It may take me a little bit longer and I may not remember some things like your name or what town it is, but I do my best to enjoy the moment. I like to read, This year 2009 I actually was staying in a castle in Italy and got to lay in a hamock and read. I love to knit, hike, (I should say walk), and photography. I try do something every day to build up new brain pathways.
I love traveling the USA - the world. MS will not stop me. These days the closest I come to my Bliss
MacT updated their status 8:10pm
Started Copaxone today Still feel good!…
MacT updated their status 3:14am
In the sun at least 15 minutes a day - often doing Yoga in the sun.…
MacT wrote a journal entry updating their play piano comfortably goal 6:57pm
Hello Everyone! Sorry I do not get on here very often but my computer is unreliable at best. I am now…
MacT changed their mood to Excellent 6:47pm
MacT turned 54 12:00am
November 8, 2009 6:57pm
Hello Everyone! Sorry I do not get on here very often but my computer is unreliable at best. I am now on the computers Safety mode. But I am here!
I …
June 18, 2009 6:50am
Thanks Doug for the uplifting sentiments. Nice to come back to.
Greetings and Salutations Everyone! I used to say that in high …
March 9, 2009 10:54pm
I think I have been doingpretty good the last month. I did have that incident where I took the wrong medicine for a week but all I got from that was …
February 5, 2009 5:54pm
I can not remember one second to the next. I am going along doing something, and suddenly I can't remember what I was just about to do. It is a …
December 15, 2008 10:17pm
I was on a good roll. now the combination of my working hard and long on things that turn out to be irrelivant or unnessiccary and waste time I need …
Thanks for the ray of sunshine!! We really need it here!! I was starting to feel better but it feels like it is coming back again. I have had a bonchial infection and a sinus infection since the first of the year and they just can't get rid of it. I am on my fourth antibiotic and I don't know if my body can handle anymore!!! This Tysabri has ruined my immune system and I can't seem to do anything about it. I hope your winter is going better and thanks again!!
I am always forgetting things right after they happen and I don't remember things either. I feel sorry for you but I also have those feelings and I think our brain is just short circuiting and we just need to do what we can when we feel better. Then we thank the Lord for everything that we can do!!!!
I am very proud of you amd you have set an example for me to follow!
About 7 years ago I thought I was losing my mind. My co-worker kept telling me to go to the Dr. I was confused, repeating myself, not knowing what I said or did, not to mention the fatige. The Doc treated me like a hypocondreac each time I went.Finally a nurologist gave me an MRI and found I had leisons in my brain. MS (sorry about the spelling)
My sister has Lupus. No one else in the family history- Lupus nor MS, which I have. She was in denial even the 2nd hospitalization. Till they haded her a big book with a long list of symptoms of Lupus- She had the worst of them. after she got out og intensive care that time they gave her Disability for while. She worked got sick and has applied for SSD again. I heard that there is connection of sisters with Lupus and MS. anyone heard that?
I have always been a night person. I have always liked to sleep late and stay up late. since getting MS it seems I have no choice in the matter. TV and Computers keep me up or just my raging mind. Then I can fall asleep with no notice and rely on Provigil to stay awake and get me out of bed. It is a hard way to live even if I am on disability and don't usually have commitments to keep. My life is scheduled from 1pm to 3am.
best friend in late stage Ovarian Cancer. has had many relapses and lots of chemo. Drs. are not feeding any nutrients only electrolights magneasum and hydration AND radiation. WE are having problems gettting any nutrition and she will be going to her daughters wedding in 1 week. help is there any thing her body/ liver can deal with.???
