long time lots of change!!
July 14, 2009 3:54pm
well its sure been a long time since i last wrote, im now a single mum to 5 as dh walked out for another woman 3 days after last writing my journal, …
maisymumkins
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About Me
maisymumkins
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About Me
sahm to 5 .4 of which have problems. 6yr old has aspergers,
sahm to 5 .4 of which have problems. 6yr old has aspergers,
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Journal
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Journal Entry for November 13, 2007
November 13, 2007 5:43pm
well we now are the parents of 2 little aspergers ,Toms diagnosis was on wednesday. so its been a shock as we didnt think they would …
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Journal Entry for November 6, 2007
November 6, 2007 5:12pm
WELL, its been a while so much to say but so little movement in the fingers lol!!! flaring up arthritis has raised its ugly head and no …
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Journal Entry for August 23, 2007
August 23, 2007 1:25pm
well today its the 2 day start of my dh days off, i feel bad because ive spent the afternoon sat of my bed , i am so sore my joints are flaring …
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Journal Entry for August 15, 2007
August 15, 2007 6:03pm
i know its been ages but been sooooooooo poorly. found out a have the "hib" virus (haemophilous influenza") nothing to do with …
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Prayer
A prayer for you and your family that you will find an affordable home where you'll feel safe!
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sorry ive bee gone so long. I have issues.
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hi, maisy. you sound a lot like me. i know i've got pernicious anaemia & osteoarthritis, but i too get the flu-like symptoms. i asked on another health site if it could be lupus, but the concensus seemed to be that it's rhumatoid arthritis. whatever! i tend to do what i can, when i can, but then i don't have 5 kids! i hope you find out what it is soon & can get some treatment started. i saw 1 haemotologist who told me to stop drinking, stop smoking & take more exercise! i don't drink, had stopped smoking & exercise when i can! the prat! there must be some good consultants out there. try to look after yourself. di.
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Hey there I was just thinking about you! Hope all is well. Try not to get bogged down by the everyday slings and arrows! And don't be shy about asking for help! You will survive, look at how much you have accomplished already:).
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I'm new here and just wanted to say hi
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Support Groups
Close Fragile X Syndrome
i am searching for an answer for my almost 4 yr old who up untill now i couldnt pinpoint his massive problems to anything in particular, he has pectus excavatum, epilepsy, flat feet, hypotonia, blue eyes( apart from the baby all the others are brown eyed)autistic like behaviours like hand flapping, anxious e.t.c i came across this condition totally by sheer fluke, i was trying to fix my norton security when i hit a button it was a site on fragile x, the more i read the more boxes i could tick!
Close Rheumatoid Arthritis
i am a mum to 5 i have sero negative polyarthritis i have been suffering bad flare ups as long as i can remember since early 20.s
Treatments
- Voltaren Not Working
- not been given any alternatives
- Robaxin Somewhat Helpful
- ok for pain somewhat but spaces me out so am reluctant to use untill kids ib bed lol!!
- Dihydrocodeine Somewhat Helpful
- as above but worried about long term use
Open Parenting Toddlers (1-3)
mum to 5 children including 19 month old girl with a huge congenital birthmark on left arm.shes a dainty girl who struggled with failure to thrive as did 3 other of my children.very cheeky faced tot who we adore !however she does scream a lot and spent her first months doing so non stop constantly!!!
Open Autism / Autism Spectrum
sahm to 5 kids 6 yr old aspergers 3 yr old poss too with lots other issues maybe fragile x.6 yr old hates his school doesnt fit in. i need to make him happier and will do what i can for him
Treatments
- Melatonin Working / Worked
- he sleeps !!! first asleep at night, still wakes early but at least hes getting a good block of sleep now, more refreshed in the morning
Open Anemia
Type: Vitamin B12 Deficiencyi have inherited pernicious anaemia. it was only diagnosed 2 weeks before our last baby was born.i have B12 JABS every 2 weeks at homne and 3 monthly at docs. after much reading on the web i found the pernicious anaemia society uk they were really helpful, i found out about self administering the jabs as my doc wouldnt budge the 3 month rule and it wasnt enough for me to last that long.
Open Fibromyalgia
maisymumkins hasn’t entered any details for this support group.Open Arthritis
mum of 5 kids 14,6,5,3,19months. some have disabilities. have an undiagnosed arthritis hoping blood test this time will tell but suspected r.a.suffer crippling pain, flare ups, feeling like the flu, stiffness, all the usual symptoms,having a battle with docs for yrs for a diagnosis so i can move on with my life.i know it wont go away but then we can get help for me and our children. day to day living is hard at the moment
Treatments
- Anti-Inflammatory Diet Not Working
- been on voltarol several yrs no joy
- Ibuprofen Not Working
- was on this for yrs till i had bad asthma attack you are not supposed to take them if you are asthmatic lol!!!!:( my doctors are bob
- Robaxin Somewhat Helpful
- this is a muscle relaxant i take it along side co-dydramol .it takes the edge off the pain when its not too bad, does nothing during a bad patch.
Open Epilepsy & Seizures
son almost 4 had 1st seizure at 22 months,fighting for diagnosis ,doctor asked us to video him when he has one to confirm!!!! think he has a lot at night and may have fragile x - epilepsy is common apparently,looking for anyone who may be going through or have been through similar, to give me a little insight -any thing welcome as i feel overloaded our family have so many issues
Treatments
- Depakote Not Working
- dont think on the whole this helps makes him sleepy but has most seizures at night doesnt control in my opinion
Open Urinary Incontinence
have over active bladder recently dx. take ditropan makes me dizzy though.
Open Financial Challenges
we have huge debts arising from just living expenses and not having enough money to go round, we are stuck in a rut and cant seem to get out
Open Hearing Loss & Deafness
Type: Sensorineural (Moderate)i am recovering from the Hib virus (haemophilus influenza) and was not told i had it till i tested positive sevral weeks lare. as a result and a complication i have found my hearing esp in right ear compromised. very frustrating
