my dad's death
April 6, 2009 4:55am
tyanna
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About Me
tyanna
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About Me
hi, my names louise & i live in the uk. i am registered as totally blind, but have some light, dark, shape & shadow percepsion. i have an eye condition called retinopathy of prematurity wich means that my retinas have detached from the back of my eyes. i am still in education & have just finished a year at a special school wich happened to be totally wrong for me. i'm looking to share experiences & learn from others, & also to make new friends.
hi, my names louise & i live in the uk. i am registered as totally blind, but have some light, dark, shape & shadow percepsion. i have an eye condition called retinopathy of prematurity wich means that my retinas have detached from the back of my eyes. i am still in education & have just finished a year at a special school wich happened to be totally wrong for me. i'm looking to share experiences & learn from others, & also to make new friends.
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Interests
rugby league, listening to music (especially hiphop) but rock, country, r & b, punk, & indi, helping others, creative writing, listening to audio books, general news & politics, & learning new things.
rugby league, listening to music (especially hiphop) but rock, country, r & b, punk, & indi, helping
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Recent Activity
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Journal
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Journal Entry for July 15, 2007
July 15, 2007 5:23pm
it's all fun. today i went out wid one of my homies for her 17th birthday & it was off da chain. we went looking at exotic animals like lizards, …
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Journal Entry for July 11, 2007
July 11, 2007 6:13pm
my thoughts on goin to a special school after spending all my life in mainstreme. i'll know tomorrow whether the government are goin to fund me …
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Journal Entry for July 8, 2007
July 8, 2007 3:58pm
wots up. i just thought i'd put a lil info down about my day. i've had a normal day, not a lot going on. i got in to a scrap wid my bro, & i'm …
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Hugbook
Hug
hope youu have a great day,i happy to hear about your shape perception with stage V ROP.my baby has stage IV and the doctors are very negative about his sight in future.reading about you made me happy and positive about his future too.best of luck honey.
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may i make a friend with you?
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hope u are have in a good day
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Hi what's up?
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Hi how r u doing?
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Photos
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Support Groups
Close Blindness & Visual Impairment
Type: ----------hi. my name is louise & i was born at 24 weeks jestation weighing 1 lb & 6 oz. as a result of this i developed stage 5 retinopathy of prematurity. i am registered as blind but have light, dark, shape & shadow persepsion. even my consultant doesn't know how i can see this much as none of my retina appears to be attached. i read braille & have done since the age of 3, & i also use a white cane & have done since the age of 6. despite all this, i haven't let it get me down & have a number of interests & friends. my family are the best i could have had & they've helped me the most. i've always attended mainstreme education & am really thankfull for it. however, i may be going to a special school for 2 years & don't know whether it'll be good or bad. i would really appreaciate any imput on this topic. i would also like some help on becoming more confident about going out alone & doing things by my self. also i wondered if anyone has any tips on how i can make my muther less scared of me going in to the wide world alone. hope this overview is good enough & that i get some constructive information.
Close Diets & Weight Maintenance
my name's louise & i'm 17. i've never been opally thin, but rather plump. i was never called fat or anything as a child, but now i'm starting to feel as though i have exess poundage. i don't like the term puppyfat wich is what my family called it, & yes as i have gotten older i have lost some weight. this is due to the fact that i no longer get as hungry & tend to eat hardly any snacks & around 2 meals per day. this isn't a contious decision, but rather the way my body wants to be. however i'd just like some general advice on maintaining a helthy diet when i do not really eat or like fruit or common vegetables. i like exotic stuff like peppers, chillies & that saut of thing, but i feel that they do not constitute a good diet. i'm also looking to find some exercises that are doable at home, as i am severely visually impaired & my access to places is limited.
Open Teen Sexuality
Type: ----------tyanna hasn’t entered any details for this support group.Open Polycystic Ovarian Syndrome (PCOS)
hi. my name's louise & i'm 17. i was diagnosed with polycystic ovary syndrome about a year ago & i'm still trying to grasp it all. i started my periods at the age of 11, & they were never regular. i was always releasing some kind of brown discharge wich just increased once a month. as well as the messed up periods, i have extreme hair growth on my leggs. when i was told i had pcos, i was also told that it was directly linked to my premature birth, & that my hair growth was probably linked to my hormone imbalance caused by pcos. now i just want to know how it will affect me in the future, & whether i will ever be able to come off the contraceptive pill without reverting back to being on a period the month round. also i'd like to know if my chances of having children have been decreased.
Treatments
- Oral Contraceptives Working / Worked
- it has made my periods regular & even, as well as decreasing my hair growth. at first my periods were extremely heavy meaning that much of my outer clothing was soiled & that i couldn't go out, but after about 3 or 4 months, my periods became considerably lighter.
Open Family Issues
my names louise & i'm 17. i have a fantastic family & a fantastic relationship with them. my brother is my best friend & he'll do anything for me. my mother is my confidant & i can tell her anything. my farther is my closest friend with that crazy connection that has nothing to do with liking all the same things. my uncle & i connect but we disagree when i win the who's right debate. both my grandmas were the best for real, but now they've left this crewel world for iternal happyness. i miss them greately but the pain eases. the strongest thing in my life is love, & that's my fam.
Treatments
- Love Working / Worked
- if you are loved & love others & your self, you feel things so much more deeply & appreaciate everything. the bond you have with those closest to you is unique & can withstand immense pressure before it breaks - but when it does you know about it & its so painfull.
Open Nystagmus
my name is louise & i'm 17. i have nystagmus as a direct result of my rop. this doesn't affect my own ability to focus on something for my brain to register wot i'm seeing, it just looks to otheres as if my eyes are going crazy.
Open Retinal Detachment
hi. my name is louise & i'm 17. i have stage 5 retinopathy of prematurity & therefore both my retinas are detached. despite my eye consultant saying i should have no vision at all, i have light, dark, shape & shadow perception. i am here to find others wid similar experiences, & also to see if there are any treatments wich are designed for older people & not just babies.
