Sandr58’s Profile
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Sandr58
is feeling OK
About Me
Diagnosed with PPMS about 3 years ago. Doing really well physically but mentally is a different story. My family don't understand about the fatigue that goes with ms. My husband refuses to even talk about it. I also have a Dad that has ALS. He was diagnosed 1 1/2 years ago and right now not doing well. Would like to hear from anyone else with the same issues.
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Recent Activity
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Journal
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Hugbook
Hug
I just want to say I am sorry about your dad. My father died of ALS several years ago so I understand what you are going through.
Hug
Just wanted to say hi and welcome to DS. I would like to be your friend. You will meet alot of nice people on this site that are so supportive and caring. Take care and I hope your doing okay...
Flower
have strength.
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I’m With You
just wanted to say sorry and hang in there
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I’m With You
i take paxil it seems to work
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Primary Progressive MSDiagnosed with PPMS in 2004. Still doing well. Suffer mostly with the depression that goes with it. Family don't really understand.
Close Amyotrophic Lateral Sclerosis (ALS)
My Dad was diagnosed with ALS 18 months ago. He is on the bipap machine. Finding it hard now to even breathe with that. We are still caring for him at home. I was diagnosed with ms 4 years ago.
Treatments
- Rilutek Not Working
- He couldn't take it. Made him really sick.
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Friends
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Snapshot
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