Journal Entry for August 12, 2007
August 12, 2007 6:16pm
ANYONE WHO READS THIS JOURNAL AND HAS PULMONARY FIBROSIS NEEDS TO LOG ONTO WWW.PULMONARYFIBROSIS.ORG. THIS SITE IS SO HELPFUL AND …
Tutu
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About Me
Tutu
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About Me
I am a 58 year old female. Before moving to Texas to be closer with my family, I lived in Hawaii and was an admin for a golf course. My passion is music and my granddaughters.
I am a 58 year old female. Before moving to Texas to be closer with my family, I lived in Hawaii and was an admin for a golf course. My passion is music and my granddaughters.
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Recent Activity
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Journal
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Journal Entry for July 14, 2007
July 14, 2007 2:41pm
Four more days and my girl pal will be here from Hawaii. She always brings me Macadamia nuts and Sam Choy salad dressing. Yum! I …
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Journal Entry for July 2, 2007
July 2, 2007 5:21pm
I am sick of being on oxygen and limited to 50 feet to get around my home. I feel like a dog on a dog leash. My language has gotten foul …
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Journal Entry for June 30, 2007
June 30, 2007 12:59pm
I am anxious to begin treatment. My medicare will kick in August. At that time, I will return to California indefinately to stay with my …
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Hugbook
Hug
ure welcome friend and thanks!
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Flower
here's a hug just to say ure in our thoughts and prayers today! ---karen(ure friendly neighborhood karebear!)
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Hug
I am sorry you are suffering and that life isn't all you would like it to be. My husband has pulmonary fibrosis and life is difficult due to his depression and mood swings. I can relate to what you are going through and wish to offer a heartfelt hug, Tutu. Nicole
Hug
Sorry you are still feeeling badly, I do wish I had a better answer for you. Hang in there things will be better one day.
I’m With You
Hey, how is it going? Thoughts and prayers are going your way.
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Photos
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Support Groups
Close Pulmonary Fibrosis
I was diagnosed with CREST sydrome in 1990 manifest by Raynauds Phenomenon. 2003, Pulmonaligist advised me I was a prime canidate for sleroderma induced Pulmonary Fibrosis. 2006 was diagnosed with Rheumatoid Arthritis. Two months later while walking, my breathing was very labored. I do indeed have pulmonary fibrosis as well as pulmonary hypertension. I am a 57 yr old widow who was been active and healthy until now. Will begin treatment at UCSF in August.
Treatments
- Prednisone Working / Worked
- Very low dosage. I will be seeing lung specialist at University of California San Francisco beginning this August.
- Tracleer Considering
- This will be used for Pulmonary Hypertension.
Close Pulmonary Hypertension
I am a 57 year old woman who was diagnosed with PH June 2007. I will begin treatment at the University of California San Francisco with Tracleer. Has anyone else in the community been taking Tracleer?
Treatments
- Tracleer Working / Worked
- Will begin in August 2007. Will keep community updated on its effect.
