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  • About Me

    Image of celiamayberry

    celiamayberry

    Female
    fresno, CA, USA
    Member since June 28, 2007

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for December 5, 2007

      Mood December 5, 2007 5:22pm

      So I had the metal rod put in my arm 11/12, 2 months after the pain started in my arm.  Sure takes a long time to get stuff going.  X-rays, …

    • Journal Entry for November 3, 2007

      Mood November 3, 2007 8:52pm

      So, found out I will have to have a metal rod put in my upper arm before they can do radiation.  I feel a bit like the walking wounded this …

    • Journal Entry for October 27, 2007

      Mood October 27, 2007 2:19pm

      This week seems like a long one!  I need more radiation for right arm where lesion is pressing on ulnar nerve.  Makes for very long days …
    • Journal Entry for October 6, 2007

      Mood October 6, 2007 1:12am

      So I started Revlimid + Dex today.  The good news is that the steroid makes me nearly pain-free , but really wired me up! Since I only take …
    • Journal Entry for September 26, 2007

      Mood September 26, 2007 10:50am

      So, on Monday I found out this trial med is not working for me.  That's a bummer.  I had such hope.  Oh well, on to the next …

    Read Journal

  • Hugbook

    Give celiamayberry a hug



    • Hug

      From leylah January 1, 2008

      Thinking of you this New Year's Day and praying that you are feeling well. I'm sending prayers and hugs to you. Take care.

    • Present

      From susz December 23, 2007

      Sending you,my friend,special holiday wishes. I pray all is ok.

    • Prayer

      From leylah December 19, 2007

      Hugs and prayers for you my friend. I pray that you are feeling better today. Miss hearing from you. Take care!!

    • Prayer

      From leylah December 4, 2007

      Good to hear from you. anytime you feel lonely, remember I am here and feel free to contact me. Hugs and prayers!!

    • I’m With You

      From susz December 4, 2007

      Boy have you had a rough road,you certainly have been through alot since I heard from you last.Hang in there-you are a fighter.Keeping you in my prayers..

    Read Hugbook

  • Support Groups

    • Close Multiple Myeloma
      Stage: III

      I was first diagnosed with multiple myeloma 16 months ago after about 8 months of trying to figure out what was wrong! Now, after 16 months of treatment my plasma cell count is still no better than 60%. I'm discouraged, my doctor is surprised. What next is still to be determined.

      Treatments

      Chemotherapy Considering
      Velcade+ combo study drug
      Revlimid Considering
      maybe next
      Thalidomide Somewhat Helpful
      Velcade Not Working
      I have the best oncologist in Fresno who is supportive, informative and open. I have not had bad side effects except major neuropathy in my feet (after Velcade)
      Zometa Working / Worked
      Revlimid Too Soon to Tell
  • Friends


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