Terre is home
August 22, 2008 8:49pm
I am home from the hospital again. Still having problems with Mito Strokes and Complicated Migraines which leave me diabled on the right …
Progress
35 %
terre
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About Me
terre
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About Me
I am a professional pet sitter with my own business. I adore animals and they help me make it through my days. I used to have a booming business and because of the Mitochondrial disease I have had to cut my business to almost nothing. I have 3 cats, only 2 live with me now. One of my cats lives with a dear friend. My dog (best friend) died Dec 14th, 2006. I have 4 college degrees...medical in nature, one in the legal field. Loved the pet sitting to much. I should have been a vet like I thought about.
I am a professional pet sitter with my own business. I adore animals and they help me make it through my days. I used to have a booming business and because of the Mitochondrial disease I have had to cut my business to almost nothing. I have 3 cats, only 2 live with me now. One of my cats lives with a dear friend. My dog (best friend) died Dec 14th, 2006. I have 4 college degrees...medical in nature, one in the legal field. Loved the pet sitting to much. I should have been a vet like I thought about.
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Interests
I am totally recharged by hiking and camping and being outside. I love to garden. Music and nature, go cycling and just play around. That, with my animals and I'm ok. My pets are such a big part of my life.
I am totally recharged by hiking and camping and being outside. I love to garden. Music and nature, go
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Recent Activity
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Journal
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Sorry for the long abscence
July 5, 2008 8:44pm
Thanks to all who have been hugging and writing in my abscence. I am extremely ill right now. Still having Mito and Carn. Deficiency, now …
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Journal Entry for January 24, 2008
January 24, 2008 10:15pm
having some good & bad days. really bad back...had multiple epidural injections on tues., 1/22 seeing many new doctors, a new …
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Hugbook
Hug
Hi, terre
I have been thinking about you lately, hope all is well.Please let me know how your doing.Miss you,
wedad
Present
I am only a good friend because I have a great friend in you! I wish you and your Mother all the best. Hopefully one day I will be able to repay you both for all your kind words and support!
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Hug
HELLO TERRE, IT'S GREAT TO KNOW YOUR BACK FROM THE HOSPITAL.I TOOK ME 5 MONTHS TO GET BACK THE RESULT FROM MY MUSCLE BIPOSY,PUT EVEN THOU THERE NOT 100% SURE.I STILL HAVE ALL THE MUSCLE PAIN, AND JUST DEAL WITH THEM,I TAKE NO MEDICATIONS FOR THEM,BECAUSE OF MY KIDNEY DISEASE.I TRY TO KEEP MY MIND BUSY WITH OF COURSE OTHER STRESSES,SUCH AS WORK,MY DAUGHTERS DIVORCE,MY SON'S LOSS OF JOB ETC.BUT I WILL BE SO EVER GREATFULL IF I CAN KEEP MY KIDNEY FUCTION FOREVER,AND NOT HAVE TO WORRY ABOUT KIDNEY TRANSPLANT.I AM ALWAYS THINK AND PRAYING FOR YOU.MIRCLES DO HAPPEN,AND HOPE IT HAPPENS TO YOU.TAKE CARE OF YOURSELF. LOVE YA WEDAD
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Photos
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Support Groups
Close Mitochondrial Diseases
In July of 2006 I was diagnosed with a Mitochondrial Disorder, Carnitine Disorder and whatever else. The doctors have told me "I'm to complicated to actually diagnose." I have Complex I,II,III and IV plus Carnitine def. and CoQ10 def. I have multiple organ failures and muscle and nerve damage. But I'm hanging in and I will not leave this earth without letting people know this disease does exist. I am doing everything I know on my own.
Treatments
- CoEnzyme Q Working / Worked
- In doing research I came across a paper done by a Cardiologist which talked about increasing Q10 to as much as 800 mg/day. I tried increasing and in worked. I am at 600mg/day. Also Carnitine I increased to 20ml 3x/day and that has helped. I only do this stuff because noone else knows what to do for me....I am my own ginny pig. Don't do this stuff without talking with your doctor.
- Carnitine Working / Worked
Close Restless Legs Syndrome
Since I have Mitochondrial disease and with that problems with my muscles I just thought that is what was bothering me. It always got better when I got up and moved around until my muscles from the disease part couldn't take the movement any more. I couldn't sleep, I was only getting a couple hours of sleep and was miserable.
