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  • About Me

    Image of Mrb

    Mrb

    Male, 27
    Grand Island, NE, USA
    Member since June 17, 2007

    • About Me

      I HAVE ADDESONS DISEASE, LEAGLY BLIND, MITOCHONDRIAL DISEASE, CRONIC ABDOMENAL PAIN, LEBBERS, HAD HART PROBLEMS IN THE PAST WPW WOLF PARKENSON WHITE SENDREM I HAVE BEEN SICK FO 4 YEARS.I HAVE A WIFE AND TWO KIDS ONE BOY AND ONE GIRL THEY ARE 7 AND 1 THAT IS PERTY MUCH MY LIFE.

      I HAVE ADDESONS DISEASE, LEAGLY BLIND, MITOCHONDRIAL DISEASE, CRONIC ABDOMENAL PAIN, LEBBERS, HAD HART PROBLEMS IN THE PAST WPW WOLF PARKENSON WHITE SENDREM I HAVE BEEN SICK FO 4 YEARS.I HAVE A WIFE AND TWO KIDS ONE BOY AND ONE GIRL THEY ARE 7 AND 1 THAT IS PERTY MUCH MY LIFE.

    • Interests

      I relly enjoy being with my kids and my wife.I love fishing, working on old cars, toy models, drawing, wood working

      I relly enjoy being with my kids and my wife.I love fishing, working on old cars, toy models, drawing,

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.

  • Journal

    • Journal Entry for October 18, 2007

      Mood October 18, 2007 12:15am

      Hi every body how is it gowing well if you asked me i would say horrible about  a month ago i was told that i em dieing but thay are not to …

    • Journal Entry for August 14, 2007

      Mood August 14, 2007 2:01am

      Hi every body i em dowing ok yesterday i had a birthday party fo my son that is gowing to turn2 friday and i was lifting a grill in the back uf a …

    • Journal Entry for August 11, 2007

      Mood August 11, 2007 4:09am

      HI EVERY BODY THIS WILL BE A SHORT ONE BUT I WONTED TO  TALK WITH WORDS FOR A BIT I WENT TO THE DOC THE OTHER DAY AND THAY SAID ON TOP OF EVERY …

    • Journal Entry for August 2, 2007

      Mood August 2, 2007 4:04am

      Hi every body i had a perty good day today i felt perty good my pain was down a litle bet but still vary much their i just wish thay could figure out …

    • Journal Entry for June 17, 2007

      Mood June 17, 2007 5:35am

      Hi i am doing ok i am new to this. My wife found this so i thought i would try it.I had just got back into town yesterday night i was spending some …

    Read Journal

  • Hugbook

    Give Mrb a hug



    • I’m With You

      From angeloffire November 28, 2007

      i ahve a daughte die of this disease and i need you to talk to me

    • Prayer

      From NannaB October 7, 2007

      I am sorry. You are in my prayers. Take care. Love ya. Thanks for the hug.

    • Prayer

      From NannaB October 7, 2007

      Hope u r having a good weekend.

    • Prayer

      From NannaB September 30, 2007

      Hope you get to feeling better soon.

    • Hug

      From TrB22 September 23, 2007

      say the red smiley i hope you feel better:)

    Read Hugbook

  • Photos

  • Support Groups

    • Close Chronic Pain

      i have had chronic pain for about 3 years now and they cant figure out why or how to fix it. it could be causes by the mitochondrial disease or the addisons disease.

      Treatments

      Cymbalta Not Working
      it did not work at all
      Oxycodone Working / Worked
      iam on this right now it dose not work like i would like it to
      Stadol Somewhat Helpful
      it helps some what at least so i can do a litle bit

    • Close Addison's Disease

      I WAS DIAGNOSED WITH ADDISONS ABOUT 3 YEERS AGO AND IT HAS NOT BEEN FUN I HAVE BEEN ON EVERY PILL FOR THIS THAT YOU CAN AMAGIN BUT NOW I HAVE TO INJECT MY STARAROYD EVERY DAY

      Treatments

      Cortisone (Injection) Working / Worked
      i was not getting the reguler prednesone or cortisone into my system like it should so i have to inject it now

    • Open Optic Atrophy

      I WAS BORN WITH LEBBERS OPTIC ATROPHY I EM LEAGLY BLIND NOW

    • Open Mitochondrial Diseases

      i have been sick for 4 years and they could not find out what was roung but i had went to a doc at the mayo clinic in MN he is a genedic doc and he ended up saying i have a mitochondrial diease of some sort he is triying to find out wich one it is but he said their is so meny and thay downt know alot about them yet he said it would probly get worse

    • Open Other Heart Problems
      Type: Aneurysms

      I was dianosed with WPW in the summer of 2004 WPW is wolph parkinson white sindrem it is vary scary i had alot of atacks frome it the top part of my heart was beating faster then the bottom it is caused by to meny electrical nirves so thay had to do a cardiack ablation it did not work the first time thay went in so thay had to bring in a certen cind of machine frome another town and do it all over agin the next day. It still gives me troble frome time to time but that was a vary scary expereinc

      Treatments

      Radiofrequency Ablation Working / Worked
      It was the one of the worst experiences in my life i was told if i did not do the surjery i would die in less then a year that is not what i wonted to hear at 21 years old.If eny body has eny ???? about this i would be glat to anser them to the best of my abilety.

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