Journal Entry for June 25, 2007
June 25, 2007 1:29am
It is toooooo hot in the midwest right about now!!!!! But I am staying cool.
A fantastic breakthrough has occurred in my life. Shakin …
Simmie
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About Me
Simmie
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About Me
I am dealing with both an autoimmune disorder and neuromuscular disease of unknown origin. I have continued to research diseases that mirror the symptoms that I continue to experience. However, numerous physicians have not been able to figure out the diagnosis and neither have I. So, the search continues. It is possible that I may have a type of mitochondrial myopathy called MERRF, dercum's disease, ms, or IBM. I just keep praying that the doctors or I will one day discover what has caused the decrease in my muscle strength. I would like to be able to stop the progression of this condition, along with the symptoms that at times hinder my ability to participate in so many daily activities.
I am dealing with both an autoimmune disorder and neuromuscular disease of unknown origin. I have continued to research diseases that mirror the symptoms that I continue to experience. However, numerous physicians have not been able to figure out the diagnosis and neither have I. So, the search continues. It is possible that I may have a type of mitochondrial myopathy called MERRF, dercum's disease, ms, or IBM. I just keep praying that the doctors or I will one day discover what has caused the decrease
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Interests
I love to draw, paint, sculpt in clay, play the keyboard, listen to music from around the world, crochet, read highly descriptive fiction novels with a moral message, learn to write fiction novels, study issues about the environment, certain political topics, geology, astronomy, biology, watch wildlife documentaries, go for nature rides through the woods, short distance hikes, camping trips, sail boat rides, history tours, visit amusement parks, the zoo, the art museum, the planetarium for telescope viewing, cuddle animals and learn about God through prayer and bible readings, so that I can serve him better each day.
I love to draw, paint, sculpt in clay, play the keyboard, listen to music from around the world, crochet,
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Journal
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Journal Entry for June 19, 2007
June 19, 2007 9:02pm
Well well,
I'm back again, tappin the keys and everything is on a good note!
Met a couple of new people while out today. Too bad they both …
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Journal Entry for June 18, 2007
June 18, 2007 6:42am
Hhmm, what should I write this early in the morning? It's only 4:50 a.m. -lol
I'm totally off of my normal sleep …
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Journal Entry for June 16, 2007
June 16, 2007 1:06pm
My Word,
I cannot believe that I have lost my password for this site at least three times already.
This time, I have got it down pat.
Having a pretty …
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Hugbook
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heres a hug to let ya know that u are not alone i am here when ya need a friend heres a hug without end ure in our thoughts and in our prayers heres a hug to show i care when ure down and feelin blue remember theres some here prayin for u ----KAREN
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hay hope that u are doing ok with love emma xxx
Hug
Welcome to DS. I am glad you are here. Here is your first hug to let you know how much you are loved.
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Support Groups
Close Medical Mysteries
Years ago,experienced numbness tingling,stiff tightness, swelling,redness,pain,cramping,loss of motor ability in one hand,then shortly after both hands. Triggering symptoms- physical strain-lifting and turning hospital patients at work or fine motor skill activities--using a screw driver/writing. Then, in cold temperatures fingers would contract,blood circulation poor,hands turned bluish tinge. Hand tremors began. Age 29,muscles in legs became weak,same as hands,then arms & feet w/tremors
Treatments
- Prednisone Not Working
- Prednisone used as a trial to decrease inflammation--did not help. Felt very anxious, agitated while taking it. No longer prescribed
- Eating Healthier Foods Somewhat Helpful
- Joints more limber,less inflammation, less problems with digestion and constipa-tion,decreased muscle tremors. Felt better overall.
- Flax Working / Worked
- With a more appropriate strict diet of fresh greens and meat(other veges), helps to control symptoms a bit, plus staying hydrated. However,muscles are still weak.
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