Journal Entry for November 8, 2007
November 8, 2007 5:12pm
I appologize for not responding to everyone. I needed a time to take leave of my writing and just focus on healing. I am still struggling …
Snoopy05
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About Me
Snoopy05
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About Me
I am a state employee for 10 years, have 4 grown sons, 3 grandbabies and one baby on the way. I am single and dating a wonderful man, Nolen, who is very supportive. We are planning to live our the rest of our lives together. He is retired and helps me with my every day situations and takes me to the doctor. I am legally blind. My Lupus was diagnosed 4 months ago. I believe that the success of a person, whether professionally or personally, depends on the persons attitude.
I am a state employee for 10 years, have 4 grown sons, 3 grandbabies and one baby on the way. I am single and dating a wonderful man, Nolen, who is very supportive. We are planning to live our the rest of our lives together. He is retired and helps me with my every day situations and takes me to the doctor. I am legally blind. My Lupus was diagnosed 4 months ago. I believe that the success of a person, whether professionally or personally, depends on the persons attitude.
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Interests
Playstation games online, PC games, movies, music of all types, spending time with my boyfriend and family, boating, writing poetry, and watching the show "Lost" on TV.
Playstation games online, PC games, movies, music of all types, spending time with my boyfriend and family,
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Recent Activity
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Journal
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Journal Entry for October 16, 2007
October 16, 2007 11:22am
Just writing this journal today to update everyone on what has been happening. After I stopped taking the 30 mgs of Prednisone a few weeks …
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Journal Entry for October 10, 2007
October 10, 2007 5:58pm
I talked to my doctor and he said I have to be totally wheelchair bound before my insurance will pay for me a scooter. So it is up to me to do …
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Journal Entry for October 5, 2007
October 5, 2007 1:27pm
Hi everyone, I am doing better than I have in about 3 weeks, but I think that is because I am not walking much and I am back on a small dose of …
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Journal Entry for October 2, 2007
October 2, 2007 12:03pm
Good morning everyone. I am on my sixth day of 20 mgs of Prednisone and the double dose of Lasix. I am feeling much better. I still …
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Photos
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Support Groups
Close Lupus
I am 55 yrs old, diagnosed with Lupus several months ago, just needing information and help understanding Lupus.
Treatments
- Celebrex Working / Worked
- Has not completely helped with my symptoms. I am now on Tramadol so my doctor took me off Celebrex. It helped with some pain, but not all. Tramadol has a better effect, still pain, but not as severe.
- Medrol Working / Worked
- New steroid I am starting today. My drugist told me something about it, it is similar to Prednisone, but not to be taken as long a period of time. I take this 5 days.
- Nexium Not Working
- Used this for several years when they thought I had arthritis. Didn't work at all to control the pain.
- Plaquenil Working / Worked
- I have used this medicine for about 4 months, helps relieve some of the symptoms, not all.
- Prednisone Working / Worked
- Have been taking this now for about 4 months, seems to help, but there are days that nothing helps. I was taking 30 mgs, but my doctor took me off, because he thinks it caused me to swell. I am still swelling without the Prednisone. Now I feel even worse. I recently went back on 10 mgs for one week, now am not on it again. I can tell a big difference when I stop taking it. My symptoms are much worse.
- Tramadol Working / Worked
- I just started taking this because my doctor took me off Prednisone. It is a pain medication that seems to be helping with some of the pain, just not all of it. It also makes me a little sleepy.
- Lasix Working / Worked
- I had 2+ edema in my legs and actually most of my body. (even my face) I take 40 mgs of lasix and it has brought the swelling down. I run to the ladies restroom about 10 times a day, but it is worth it. The swelling caused much more fatigue, pain, and difficulty walking/using my joints.
Close Depression
Type: Clinical (Major) DepressionI have been depressed for several years and tried several medications, but finally after being hospitalized I have medication that is working.
Treatments
Open Blindness & Visual Impairment
Type: Legally BlindI was born with ROP, have been legally blind since birth, at one point in my life I was statutory blind, now after cataract surgery I am able to see better in my right eye, but still have peripheral loss. I also have both types of glaucoma. ROP causes me to not be able to focus very well. I have light sensitivity in my left eye only.
Treatments
- Laser Surgery Working / Worked
- This was for the narrow angle glaucoma and helped but did not cure the glaucoma.
- Xalatan Working / Worked
- Used for wide angle glaucoma and has not completely kept my pressure down. My numbers still go up to around 23 at times.
Open Sleep Apnea
Diagnosed September 2006, already increased CPAP settings to a higher level. Still experiencing narcolepsy type symtoms during the day but recently put on Provigil for narcolepsy and that has really helped.
Treatments
- CPAP Working / Worked
- Started on setting 10 and now on setting 15. My problem is the strap for the mask is too big and slides off my head when I lay down.
Open Rape
I was raped by a high school friend in my own home when I was first married and 20 yrs old. He was also a friend of my husband. I did not yell for fear my husband would walk in and blame me. He raped me on my couch in my living room. My husband was in our bedroom. Due to later cituations, I now believe my husband was in on the planning of the rape.
Treatments
- Rape Counseling Too Soon to Tell
- I suffer from depression and anxiety because of the rape and other issues. I see a psychologist and we are dealing with the rape now. It has helped to talk to him.
- Cymbalta Working / Worked
- Helps with depression. Have been using it for 8 months.
- Clonazepam Working / Worked
- I use this for anxiety and it has helped. I cannot take it during the day or it will make me sleepy.
Open Hysterectomy
I had severe abdominal pain for several months and finally it became so bad I could not walk. I went to an OB/GYN who ran tests and did ultrasound and found cysts on my ovaries and fibroidcysts in my uterus. I had the hysterectomy when I was 45 yrs old. I am 55 now. I have 4 children and was not waning anymore kids. The surgeon said the cysts were bad and had been there since birth. He said one cyst had completely blocked my filopian tube. He did a complete hysterectomy laproscopically.
Treatments
- Estratest Working / Worked
- This is a hormone replacement. It helps me to be less dry and does not effect my sex drive, in fact helps it.
- Premarin Somewhat Helpful
- Helped with hot flashes and other symptoms, however, it made me have no sex drive at all. So I told my doctor and was changed to Estratest.
Open Anxiety
I have had panic attacks and severe anxiety for several years and it mostly started when I was a teacher. My vision is the cause of most of it due to being legally blind and not being able to see. The feeling of fear of my surroundings due to visual impairments makes me have panic attacks when descending stairs, trying to locate exit doors, or just find people. My worse anxiety was when I was living with my previous husband. He was so verbally abusive the last 2 yrs of our marriage.
Treatments
- Ativan Working / Worked
- Worked for a while, but made me sleepy and stopped working.
- Klonopin Working / Worked
- I am still using this and it is doing fine.
- Lexapro Not Working
- Caused severe headaches.
- Psychotherapy Working / Worked
- I see a Psychologis off and on depending on the severity of my symptoms. I also have depression and take medication for that as well.
- Divorce Working / Worked
- My ex-husband was a major role in causing my anxiety. He was verbally abusive the last 2 years we were together which made my anxiety very bad. Leaving him helped a lot.
Open Self-Injury
I havn't hurt myself yet, but have thoughts to do so all the time. I was actually so frightened in August, 2006, because I had such stronge urges to cut on my arms, that I went to the ER. I think my desire to cut on myself stems from my childhood of having a mother that was very controlling, now it is because I was raped and he held my wrists and forced himself on me. I then had a problem telling my family too becasue they think I brought it on myself. Thinking like that breeds guilt.
Treatments
- Outpatient Treatment Program Working / Worked
- I see a Psychologist 2 times a month or more.
- Talking Somewhat Helpful
- Taling to my fiance' helps, he is a Drug/alcohol counselor, but retired.
- Clonazepam Working / Worked
- Helps with anxiety. Lessens the stress which feeds on my desire to cut.
- Risperdal Working / Worked
- Lessens the voices that tell me to cut myself.
- Cymbalta Working / Worked
- Helps with the depression pretty well but the Lupus and Prednisone has caused the depression to become worse.
Open GERD & Heartburn
Thought I was having a heart attack and went to the ER. They kept me overnight and ran the usual tests for my heart, found nothing, then did they tested me for GERD. I was put on medication and the symptoms left. That was over 5 years ago, only have the symptoms now if I forget to take my medication. But the memory issues are another community, OLD AGE
Treatments
Open GERD & Heartburn
Thought I was having a heart attack and went to the ER. They kept me overnight and ran the usual tests for my heart, found nothing, then did they tested me for GERD. I was put on medication and the symptoms left. That was over 5 years ago, only have the symptoms now if I forget to take my medication. But the memory issues are another community, OLD AGE
Treatments
