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Well, it's been almost a month since I started the Elmiron. Of course I don't feel any different yet, and yes, I have noticed hair loss, but I am fortunate enough to have a lot of hair to spare, so hopefully it will not be noticable to anyone else. Also, I have discovered the miracle that is Prelief! Recently I started having some nights that I was in a lot of pain, nights that before my diagnosis I would have mistaken as stomach trouble. I realized the pain was really my bladder, there was some burning, and I stopped eating everything but unseasoned rice and vegatables out of worry.
Since my parents were coming to town and I would be eating out a lot, I hunted up some Prelief in Walgreens, hoping it would keep that sharp pain at bay when I couldn't avoid acidy foods. And lo and behold, it did! I felt so so so much better! I'm taking two of them before I eat anything now, and still feeling good. If you haven't tried it yet, do it now!!
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About the Elmiron... I really had a hard time with it for a while... I lost a lot of weight, which wasn't so bad to me, except that it was so fast I felt like a shar-pei... LOL But, that being said, I feel like it's working for me now. I have been on it since mid january. I still have the consistant hair-loss ( but like you I had enough hair for 3 people, so I almost have a normal head of hair now). I had a hard time waiting on the Elmiron to work so I was on the bonus plan instead of 12 lavage treatments, I went from Jan- May 3 x a week the first week, then off after the 12th treatment for a couple weeks then back to twice a week until the end of may.
About the prelief, I use it anytime I eat! So Love it, b/c lets face it there are times we can't eat perfectly. I don't even worry about if I think the meal is safe for me I take it anyways. If it aint broke don't fix it!!
Good luck!
cristeach
I've been taking 2 Prelief 3 X daily with my Elmiron, as well as taking it before dinner. It really seems to help. I found a website that sells Prelief in 300 count bottles; its wholesalesupplementstore.com. I've been on Elmiron since late January and I haven't had any hair loss. I think it must be working because I rarely have any pain and if I do, it's very mild.
LWowk