Journal

Well, I took my extra dose of Dex yesterday.  I did have to take 2 ativan last night to sleep.  I sure hope i don't get addicted to it.

This morning I sorted my pills.  I'm gettin pretty good at swallowing them.  I should be starting the Revlimid sometime tis week.  I'm anxious as to how it reacts with the DEX.  I'm wondering now if the dex plus velcade cause my reaction last time.  It would be so great to get thru this without blowin up like a baloon.

I'm going to try to concentrate on protiens and whole grains and attempt to avoid simple carbohydrates.

I really, relly feel good about the care I am getting thru USCF.  I like Dr. C, but he can be moody and I don't think he takes me seriously when I complain==he just sees me as complaining.  I see it as giving my symptoms so that he can help me determine if they are normal or if something needs to be looked at.

I wish I didn't haven't a problem standing up to doctors, but that's the way I am.  I will just have to learn to get over it.  Nancy is wonderul for helping me get over my shyness.  I don't know what I would do without her. 

Well, yesterday I had a Dex crash.  I didn't do much of anything all day long except eat.  I don't think that was the DEX though, just boredom.

I got a surprise phone call this am from Dr. M at UCSF.  He is on call this weekend.  He asked me about the meds and was surprised that I wasn't on the Rev yet.  I got the feeling he might be a LITTLE bit upset with Dr. C.  Anyway, he told me the dex wasn't enough but since it takes awhile to get the Rev ok'd to take 10 dex today, tmw and monday and then on Tues take 5 and on Wed take 5.

I talked to Dr. M about my hip pain.  He feels it is the myeloma and that the pain should get better when we get the Rev going.  It didn't start until the biopsy, but it seems like you talk to cancer patients or family who have story after story after a procedure being done (like surgery or something) and then the cancer seems to take off.  I just have a feeling that the biopsy set off the pain.  

My dear friend Sylvia came over last night to watch Nights in Rodanthe with me.  It was fun having the laptop my sister bought me.  Neither one of us knew where Rodanthe was and so I just looked it right up on my laptop.  I don't know what I would do without Sylvia.  I told her someone needs to take care of her.  She not only takes care of her fiance, Sonny, she takes care of me too now.  She made me some delicious spaghetti and brought it over for my dinner.