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  • About Me

    Image of fjavila71

    fjavila71

    Male, 38
    Sterling, VA, USA
    Member since December 27, 2006

    • About Me

      I have bilateral TN. The pain is active on the right side of my face, but controlled through tegretol. I had Microvascular Decompression brain surgery on the left side of my head in 1993 and thanks to God, I have been pain free ever since. The pain on the right side first appeared about 4 years. Last winter it got so bad that I almost had surgery but a change in the meds eventually subsided the pain and it's been under control ever since. I love to run & play my guitar.

      I have bilateral TN. The pain is active on the right side of my face, but controlled through tegretol. I had Microvascular Decompression brain surgery on the left side of my head in 1993 and thanks to God, I have been pain free ever since. The pain on the right side first appeared about 4 years. Last winter it got so bad that I almost had surgery but a change in the meds eventually subsided the pain and it's been under control ever since. I love to run & play my guitar.

  • Recent Activity

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  • Journal

    • Journal Entry for November 25, 2007

      Mood November 25, 2007 11:42pm

      I haven't had a shock in about 4 or 5 days.  Totally pain free.  It feels wonderful and I praise the Lord for such relief.  I hope …
    • Journal Entry for October 4, 2007

      Mood October 4, 2007 10:17pm

      My pain just doesn't want to make up its mind.  It's negligible for many days, just a nuisance, then comes on strong to remind me that …
    • Journal Entry for September 25, 2007

      Mood September 25, 2007 10:28pm

      Anyone that's interested in the Gamma Knife procedure, check out this webcast. http://www.or-live.com/PittCounty/1511/index.cfm?review=yes copy …
    • Journal Entry for September 15, 2007

      Mood September 15, 2007 11:18am

      The shocking pain has been getting worse.  Today I got a jolt that registered a 10 on the pain scale.  It was so intense my head flinched, …

    • Journal Entry for July 1, 2007

      Mood July 1, 2007 9:54pm

      The TN pain I'm getting is the shock-like electracutions on the right side of my face near my cheek and it's always in the same spot …

    Read Journal

  • Hugbook

    Give fjavila71 a hug



    • Hug

      From CocoChanel January 16, 2008

      XxXoXOoooxOO00x0

    • Snowman

      From lhawn December 21, 2007

      Hope you are still doing good and I wish you and your family a VERY MERRY CHRISTMAS!!!

    • Flower

      From CocoChanel November 13, 2007

      Thank you for the encouraging words. Hope in the Lord is the thing that keeps me going. XOOx

    • Hug

      From lhawn November 4, 2007

      Thinking about you and hoping you are doing good. Hugs, Lisa

    • Hug

      From niecy619 November 4, 2007

      Hey Friend!!! Hope you are having a blessed weekend! Hugs for ya, Niecy.

    Read Hugbook

  • Support Groups

    • Close Trigeminal Neuralgia

      I have bilateral TN. The pain is active on the right side of my face in the 2nd branch of the Trigeminal nerve. I am pain free on the left side of my face thanks to the microvascular decompression brain surgery I had in 1993. I've had the pain on the right side for about 4 years and has been under control with meds. Last winter I had a bad flare up, which almost resulted in another MVD, but the pain subsided.

      Treatments

      Tegretol Working / Worked
      Currently taking a cocktail of meds, which minimizes the pain. However it makes me tired, I sometimes have a brain fog and short term memory issues.
    • Close Asthma
      Type: Childhood Asthma

      I was born with Ashthmas and suffered from it tremendously as a child. I was in and out of emergency rooms, doctors offices, etc. I haven't had an asthma attack in almost 20 years. I even now run rigorously, but not before a puff of albuterol. I thank God for letting me breathe normally.

      Treatments

      Breathing Exercises Somewhat Helpful
      I was taught slow deep breathing through the nose, out through the mouth, which helped somewhat.
      Inhaler Working / Worked
      Albuterol has been my "third lung" since I was a kid. It's wonderful. just be careful not to overdose on it as I did a few times.
      Albuterol Working / Worked
  • Friends


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