still TYSABRI
November 20, 2009 12:59pm
HI ALL
I DID MY 34TH SHOT, I THINK. ITS IN THE 30'S...BUT I STILL FEEL GOOD, NO SIDE AFFECTS FROM IT, DR STILL HAS ME ON NEUROTIN, …
Progress
60 %
jav
10:53am Monday
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About Me
jav
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About Me
I AM A MOTHER OF TWO BOYS, AGES 15 AND 17, I ENJOY COOKING, BAKING, AND LISTENING TO MY COUNTRY MUSIC.I LISTEN TO KENNEY CHESNEY AND TOBY KIETH... I WAS DX IN JAN 07, WITH RRMS AND STARTED AVONEX IN MAR, RELAPSED 5 TIMES BEFORE TAKEN OFF AND STARTING TYSABRI IN OCT. GOT MY HAIR CUT OFF SHORT BECAUSE I WAS ALWAYS ON PREDISONE AND MY HAIR WAS COMING OUT EVERYTIME I BRUSHED IT. TYSABRI HELPS.JUST TOOK MY 30TH SHOT, AND I HAVENT HAD ANY TROUBLE. SEEMS TO BE WORKING, I STILL NEED SUPPORT WALKING, BUT THAT MAY BE PERM. MY LAST RELAPSE IN JUNE OF 07 DID A LOT OF DAMAGE TO ME, SEEMS LIKE I HAVE NO MEMORY OF CERTAIN THINGS, AND MY ABILITY TO WALK BY MYSELF IS LIMITED, SO I USE A CANE. I TELL PEOPLE THAT I HAVE MS, IM PRETTY OPEN ABOUT IT. MY BOYS UNDERSTAND THAT I GET TIRED VERY QUICKLY, AND ALL THREE OF MY MEN ARE VERY SUPPORTIVE. I GET THRU MY DAYS WITH LAUGHTER AND HUMOR, SO IF I HAVE YOU AS A FRIEND, YOU MAY HAVE TO TAKE SOME RIBBING, CAUSE AS I HAVE BEEN ABLE TO TAKE IT, WELL I CAN DISH IT OUT TOO...HEHEHEHHEH
I AM A MOTHER OF TWO BOYS, AGES 15 AND 17, I ENJOY COOKING, BAKING, AND LISTENING TO MY COUNTRY MUSIC.I LISTEN TO KENNEY CHESNEY AND TOBY KIETH... I WAS DX IN JAN 07, WITH RRMS AND STARTED AVONEX IN MAR, RELAPSED 5 TIMES BEFORE TAKEN OFF AND STARTING TYSABRI IN OCT. GOT MY HAIR CUT OFF SHORT BECAUSE I WAS ALWAYS ON PREDISONE AND MY HAIR WAS COMING OUT EVERYTIME I BRUSHED IT. TYSABRI HELPS.JUST TOOK MY 30TH SHOT, AND I HAVENT HAD ANY TROUBLE. SEEMS TO BE WORKING, I STILL NEED SUPPORT WALKING, BUT
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Interests
I I HAVE A 100 POUND BLACK LAB NAMED DOBEE DOO, SHE LOVES TO PLAY BALL, WE ADOPTED HER FROM A BAD HOME. SHE WILL NOT LEAVE MY SIDE, AND I THINK SHE UNDERSTANDS THERE IS SOMETHING WRONG WITH ME. DA MY MOM IS SLOW!!! HEHHEEH I BAKE HER SPECIAL COOKIES WHEN IM IN THE BAKING MOOD, WHICH IS ALMOST EVERYDAY. I LOVE TO COOK AND MAKE DESSERTS. I HAVE A GROUP HERE CALLED "THE FOODS WE EAT", AND YOUR WELCOME TO COME IN AND JOIN, AND HAVE FUN IN THE KITCHEN. I AM A BROWNS, INDIANS AND CAVS FAN. I LIKE COUNTRY MUSIC AND ENJOY LIFE WITH THE LOVE OF MY LIFE, AND TWO WONDERFUL BOYS, .WOW....THEY GROW UP FAST!!! ENJOY EVERDAY! I AM ONE OF 13 CHILDREN, AND MS IS NO WHERE ELSE IN MY FAMILY, SO I DONT UNDERSTAND WHY GOD PICKED ME TO HAVE IT.BUT ITS MY CROSS TO BEAR AND IT HAS HELPED ME TO UNDERSTAND MORE OF LIFE THEN I DID BEFORE. I KNOW IT COULD BE A LOT WORSE, ALTHOUGH SOME DAYS I FEEL LIKE IM 200YRS OLD...LOL I LOVE TO MAKE FRIENDS AND ENJOY LIFE, A SENSE OF HUMOR HELPS ME A LOT!!!
I I HAVE A 100 POUND BLACK LAB NAMED DOBEE DOO, SHE LOVES TO PLAY BALL, WE ADOPTED HER FROM A BAD HOME.
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Recent Activity
Recently:
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16 hugs received, 15 hugs given, 3 group discussion posts, 1 journal comment, 1 journal post
Yesterday
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jav gave EPagain a 'go for it' 1:45pm
YOU WANT AN OUTFIT TO COOK IN TOO, HAHHAHAAHHA…
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jav gave ddeadred a funny face 1:39pm
SOUNDS LIKE MEMORIES BEING MADE..HAVE FUN, I BAKE, HUNNY COOKS, AND I HELP OUT...…
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jav gave EPagain a funny face 1:38pm
WELL YOU KNOW HOW HOT OHIO CAN BE THIS TIME OF YR.....LOL…
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jav gave blondie77 a 'go for it' 1:37pm
I THINK MY OUTFIT IS BETTER...HAHHAHAHAHAHHHA…
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jav gave blondie77 a little love 1:36pm
GREAT DAY TODAY.....U?…
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Journal
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A POEM FOR DIETER..MY HUNNY
November 5, 2009 12:44pm
NOW, I HAVE A WONDERFUL HUSBAND, AND I LIKE TO WRITE POETRY, SO HERE IS ONE I HAVE DONE AND STILL AM WORKING ON......
MY HUSBAND … -
NEVER MET A STRANGER
October 27, 2009 11:35am
MY DADDY ALSO TOLD ME I GAB TOO MUCH, BUT I HAVE NEVER MET A STRANGER, BECAUSE I JUST START TO TALK TO THEM AND FIND THINGS OUT AND WE ALWAYS …
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THE DREADED PARENT TEACHER CONF...
October 15, 2009 10:48am
WELL TONIGHT IS THE YUKKY PARENT TEACH CONFERENCES...1ST OF ALL I DONT LIKE TOO MANY OF THE TEACHERS...IM HAVING PROBLEMS WALKING DUE TO THE …
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AWAY A FEW DAYS
October 5, 2009 1:52pm
WELL WE WENT TO MI A FEW DAYS FOR A WEDDING, IT WAS AN EMOTIONAL FEW DAYS, AS MY NEPHEW, WHO GOT MARRIED IS GOING TO AFGANISTAN...ITS JUST HARD …
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Hugbook
Flower
hahahaa. I am from the rocky mountains!..Why of course thats exactly what I meant.(cough!)! Here are some hand picked 'rocky mntn' wild flowers just-for-u!. ;)
May you and your family have a great Thanksgiving- (smiles)-
Funny Face
About the same temp as IL or MI this time of year....so steaming hot ( :
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Ray of Sunshine
WOW...what an outfit ( :
Kiss
WHO SAID ANYTHING ABOUT DRIED DROOL? I SLOBBER LIKE A ST. BERNARD!!!!LMAO LOVE YA, DAVE
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Hug
Big huge Thursday hugs ..hope you have a wonderful evening Steph
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Photos
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Goals
Progress
30 %
Goal End Date is Dec 31, 08 325 days ago.Distance (miles)0.2 -
Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSi was diagnosed in jan 2007, started avonex in march. i still had relapses about every month, i had a lot of numbness from the chest down, started tysabri in oct 07.
Treatments
- Avonex Not Working
- DID NOT STOP THE RELAPSES, I HAD 5 IN 7 MONTHS,
- Baclofen Working / Worked
- started jul 08 good for pain in thighs
- Neurontin Working / Worked
- JUST LOVE IT. STOPS ALL THE PAIN IN MY LEGS.
- Tysabri Working / Worked
- ONLY HAD 15SHOTS WILL LET U KNOW. STILL NEED A CANE FOR STABILITY
- Yoga Working / Worked
- stretching and bending is good for ms
