The Cat Came Back
July 17, 2008 6:01pm
Hello everyone!
Guess who? Yes it's me. I'm back for the long haul I hope.
I missed you all terrible, …
Progress
5 %
Killingsworth 
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About Me
Killingsworth
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About Me
I live in Los Angeles. I have had endometriosis all of my life according to the doctors. My period started when I was 12 and lasted usually 8-10 days. It came every two weeks on a Tuesday, so yes, I was always on my period. The pain was horrible. I never grew out of it, it just got worse. I had my last surgery at the end of September last year. There were infections and such and I ended up with permanent liver and kidney damage. I'm trying to work, but have been threatened with dismissal if I keep calling in sick once or twice a week. I can't help it. If I can walk standing up, I come to work. If I can talk without throwing up, I come to work. I don't know what to do anymore.
I live in Los Angeles. I have had endometriosis all of my life according to the doctors. My period started when I was 12 and lasted usually 8-10 days. It came every two weeks on a Tuesday, so yes, I was always on my period. The pain was horrible. I never grew out of it, it just got worse. I had my last surgery at the end of September last year. There were infections and such and I ended up with permanent liver and kidney damage. I'm trying to work, but have been threatened with dismissal if I keep
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Interests
I love reading, and used to love dancing, but the last 10 years I've only danced a little every few years. I love my nieces and nephews and I love music.
I love reading, and used to love dancing, but the last 10 years I've only danced a little every few years.
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Recent Activity
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Journal
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Naturally.........
May 13, 2008 8:56am
So, I've decided to start with where I am and work my way backwards. I am currently in the hospital and using my brother's …
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IF
April 7, 2008 5:39pm
If I post my number will someone call me?
If I post my number will you call and pray with me?
If I post my number will you try …
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Mean Streak
April 3, 2008 1:36pm
What did I do, tell me what did I say?
That kicked up the dirt and brought out this side of me, baby?
No it's what …
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Cat on the Hot Tin Roof (of the Garage)
April 2, 2008 3:52pm
Now, I'm trying not to be too pissed, right?
I'm on my drive home. I pass all the dodo heads driving like it's Sunday …
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Hugbook
Get Well Soon!
Thinking of u!
Hug
Thinking of you and hoping you are okay, with friendship, Ida.
Flower
How ARE you?!!?!? I miss chatting with you...just wanted to drop by and give you some beautiful flowers.....
Hug
I hope you are feeling better. How are you? Thinking of you often. Hugs!
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Hug
Thinking of you!! Hugs! Amanda
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Photos
Killingsworth hasn’t uploaded any photos yet
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Goals
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Support Groups
Close Endometriosis
I was not diagnosed for years. Started my period at 12, it would last 10 days and come every 2 weeks. It was super heavy all of the time and very painful. The docs always said, don't worry you'll grow out of it. 17 years later had my first surgery They thought cancer, but it was endo. Had 3 and the pain always comes back each time.
Treatments
- Lupron Not Working
- I was put on Lupron before I even awoke from the surgery. One shot/month for 15 months.I gained 73 pounds in the first 6 weeks. My hair fell out. Pain never went away. A
- Surgery Somewhat Helpful
- The first surgery they removed nothing. The second surgery I woke up in the middle and felt everything. The third surgery they removed my left tube and ovary.
Close Depression
Type: Clinical (Major) DepressionDealing with depression since my teens. It's gotten worse over the years, I think in reaction to some meds I've taken for other stuff, including the depression. Go figure. I have endometriosis as well, and the treatment for that makes things much worse. How depressing it is to be sick all of the time.
Treatments
- Effexor Not Working
- Made the depression much worse. Wanted to drive my car into other cars or a wall the entire time.
- Elavil Not Working
- Same thing.
- Psychotherapy Somewhat Helpful
- If I can get out of the bed in order to go, it helps sometimes.
- Cymbalta Not Working
- Worked in the beginning. I used in only in conjunction with St. John's Wort 'cause I was afraid of the side effects. 6 months later the side effects hit me really hard.
Open Insomnia
I feel like I've been awake for the last 10 years. It started when I was a teenager. I could go weeks at a time with no sleep. The longest I've ever gone was about 3 1/2 months. No sleep at all. Apparently I looked pretty bad by then. I've had a sleep study done a couple of years ago, when I got maybe 12 hours of sleep in a 6 month period. Turns out I stop breathing a couple hundred times a minute when I fall asleep, so my mind won't let me anymore. Waiting for the insurance to get CPAP.
Treatments
- Ambien Not Working
- The doctor refused to give me a higher dosage to try after 3 months of no sleep. That's when I did the sleep study.
- Gabitril Not Working
- Didn't even know it was supposed to help me sleep. I was given it for pain.
- Lunesta Not Working
- It makes me drowsy enough so that I can't drive. But no sleep.
- Sonata Not Working
- Again, didn't work. Of course I tried it when I was working nights, so maybe those 18 months was a factor.
- Valerian Not Working
- Never ever worked, but I wanted it to, so badly.
- Hypnotherapy Not Working
- It was interesting. But it doesn't work for me.
Open Sleep Apnea
Finally diagnosed with Sleep Apnea in the fall of 2004. I stop breathing over 100 times per minute. Supposed to get a CPAP but Primary Doc get dentist to make thing to move your tongue. Dentist doesn't do that. So doc still didn't do authorization. Now 3 years later, had to do another sleep study to get the CPAP and am still waiting for it.
Treatments
- CPAP Working / Worked
- Hospitalized 4 times in 2006. Worked each and every time. And was the only time I slept. Except for the times I had to get out of the bed, I could never refit the mask correctly.
- Crying Somewhat Helpful
- Didn't really work or help. But I couldn't stop sometimes. Couldn't help it. I was desperate.
- Ambien Not Working
- Never worked. Prescribed by my Primary Physician who refused to up the dosage thinking I would become addicted to something that didn't work. And then finally after a year of my not sleeping did a sleep study and whala! Sleep Apnea.
- Lunesta Not Working
- I would have to take 8 pills to get almost 3 hours of sleep and pray that I wouldn't be interrupted.
- Prayer Too Soon to Tell
- I am still hopeful. I have made a deal with God. But I am not quite sure if I am willing to have pain for the rest of my life and sleep, or no sleep and no pain. But I pray for at least 2 hours of sleep a night. Please God.
