Journal Entry for May 5, 2008
May 5, 2008 9:12am
Hi everyone,
VISTED MY DR.LAST WEEK,AND SHOWED HER THE VITAMINS THAT IAM TAKING,SHE TOLD ME TO STOP TAKING THEM UNTIL I VISIT MY KIDNEY …
WEDAD
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About Me
WEDAD
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About Me
REAL ESTATE ASSISTANCE, 3 CHILDREN, 2 GRANDCHILDREN, I LOVE SWIMING, & GOING UPNORTH MICHIGAN.
REAL ESTATE ASSISTANCE, 3 CHILDREN, 2 GRANDCHILDREN, I LOVE SWIMING, & GOING UPNORTH MICHIGAN.
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NEW APPROCH
April 2, 2008 5:03pm
HELLO,
HAD MY VISIT WITH A HEMOPATHIC DR.LAST WEEK, HE WAS AN HOUR AWAY,BY WELL WORTH THE TRIP.THE VISIT WENT LIKE THIS: FIRST THEY SEAT YOU IN A …
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HEllo
March 24, 2008 5:46pm
Hello,
Boy ! did the month of March fly by,can't wait for Spring,I had enough of Michigan weather.
Nothing much going on,still feeling the cramps …
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Journal Entry for January 25, 2008
January 25, 2008 9:47am
Hello everyone
Well this is what is happening know, had another EMG done last week, & the results were abnormal: what they think i have is called …
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Journal Entry for December 31, 2007
December 31, 2007 10:05am
HAPPY NEW YEAR EVERYONE!!!!
I HOPE THIS YEAR BRINGS ALL GOOD HEALTH.
I HAVE BEEN BACK AND FORTH IN THE LAST FEW WEEKS FOR DR'S TO DR'S,STILL NO …
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Hugbook
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Thanks for your note. Happy Holidays to you and I hope things get better soon. Please take care Terre
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How has your diet been going? Has that helped preserve your kidneys longer? Anything special on the diet? I have not checked my email for sometime. I decided to stop thinking about it for awhile. I am also 0-. Do you have a donor? HOpe all is well - jhogga
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Thanks for reading and commenting on my joural entry. Have a wonderful Sunday
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I hope you are doing well, just thinking about you and hope you have a great evening.
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wrote a general message. thanks for the thoughts and concern especially after all this time. thanks for not forgetting me. I think of you often and have wondered what was found now I know. Thanks Terre
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Support Groups
Close Mitochondrial Diseases
I WAS JUST DX WITH THE DISEASE.FOR A NUMBER OF YEARS SEVERE MUSCLE CRAMPS,WEAKNESS,KIDNEY DISEASE,VISION WEAKNESS,FIBRO,ACID REFLEX,MINI-STROKE IN JAN.I HAVE BEEN LIVING WITH MUSCLE CRAMPS SINCE A CHILD,NEVER EXPLAINED THEM TO MY DR.I JUST LIVED WITH THEM,UNTIL 8 MON.AGO THEY BECAME VERY SEVERE,THEY WOULD ROTATE,AND LAST FOR 1 HOUR ON A DAILY BASIS.ESPECIALLY AFTER WORKING OUT.MY DR.DID A MUSCLE BIOPSY WHICH LATER CONFIRMED MITOCHONDRIAL ,THEY ARE STILL IN THE PROCESS OF DX FOR ANOTHER 3 MONTHS.
Treatments
- CoEnzyme Q Somewhat Helpful
- ALSO TAKING VIT C AND E D, AND IRON.MY LEGS FEEL A LITTLE BETTER.
