VenusLady's Journal

Its snowing right now...again....ugh :(  Me no likey!  But whatcha goona do?  Its Syracuse New York and we havent had  snow in a few days and it has been luxury heaven without it...and it is back again.

Worked and slept for Valentines Day.  I hadnt been feeling good all week, so there were like two days all I did was sleep almost all day.  Major body aching, major muscle weakness.  Valentines Day itself we did pretty good floral wise, and then when it was done, I zzzzzzzz again.  And I snoozed off and on for two days later.  Today was my appointment with my regular gp for my "women's stuff" yearly checkup.  And she had a pile of paperwork from my rheumatologist and neurologist of the lastest in stuff we are looking into.  I am told that yes, it IS very possible to have MS without having lesions.  We have located my problem area...its not my brain, it is with my spine.  My spine severely curves...like nothing I've ever seen before.  One of the docs, NOT the GP, referred to "its messed up".  Blood testings have ruled out every possible everything.  I am told I definately have Chronic Fatigue Syndrome and Inclusion -Body Myositis and Para (somethingorother) Neuropathy, so now we have to check out what's going on with the spine.  I'm waiting for the specialists office to contact me with the next appointment with a neurological team here in Syracuse.  I'm told they are GOOD.  I'm told the MS team in Rochester is even better.  One step at a time.

I hope you all have had a GREAT Valentines Day!   Hugs  Ellie