Journal Entry for February 17, 2008
February 17, 2008 6:08pm
I guess its been a while since I've been to Daily Strength. Too much drama on the message boards - I can't take it. But some people have been …
ButterflyFan
-
About Me
ButterflyFan
-
About Me
I am 33, work full-time and go to school part-time. I have a 14-year old daughter and a wonderful husband. I have MS, but MS does not have me! I try to be as positive as I can about it and not let it get me down.
I am 33, work full-time and go to school part-time. I have a 14-year old daughter and a wonderful husband. I have MS, but MS does not have me! I try to be as positive as I can about it and not let it get me down.
-
Interests
I enjoy scrapbooking, cardmaking, playing with my dog Bruce - a deaf American/Red Nose Pit Bull mix. I also like the computer and have recently gotten addicted to the game Sims - it is dangerous, you can easily spend 8 hours playing the game and it feels like 2!
I enjoy scrapbooking, cardmaking, playing with my dog Bruce - a deaf American/Red Nose Pit Bull mix.
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
Journal Entry for December 19, 2007
December 19, 2007 4:31pm
My latest MRI of the cervical spine was pretty bad, I guess. Doc Jan said that pretty much the majority of that part of my spine was inflamed. Mind …
-
Journal Entry for November 16, 2007
November 16, 2007 1:32pm
Is it time to slow down? Is it time to realize that I can't do it all? These are questions that I'm asking myself a lot lately. I don't …
-
Journal Entry for June 1, 2007
June 1, 2007 8:42pm
You can view my journal here:
http://tammims.blogspot.com/
-
-
Hugbook
Hug
Don't panic! This is MS. Welcome to the wonderful world of revolving symptoms. Having been a member of this exclusive club for some 7 years now and having experienced your symptoms on many occasions (they come and go), I have continued on Copaxone (have no idea if it works or not but unwilling to not stick with it until something new and better comes along). My numbness goes from side to side, the constipation is ALWAYS with me, sometimes I forget things (but I am getting older too), the depression gets you down, but in the end it all comes and goes and is cyclical. Don't worry, this too shall pass. Just keep in mind YOU ARE NOT GETTING WORSE and think that as a mantra. New drugs are on the horizon and we will prevail! I have to keep this in my head or I couldn't keep going. I hope the Rebif is better for you. I chose Copaxone even though it is a daily, crappy injection, over the others because of the action of the drug, not going through the liver and therefore not requiring liver enzyme testing, etc. Also, I am NOT big on needles and this came equipped with an autoinject that I cannot see so I just push it and cringe. The reaction time lasts anywhere from 1/2 hour to 2 hours depending on the site. The dents in my skin are obvious, but hey I can tell everyone it is cellulite! Look for a positive and keep your chin up. Fingolamoid is just an FDA pass away as are 2 other oral drugs which look promising. Stay strong and be well and know that we are all out there pushing forward just like you! JudyZ
Hug
Oh, that's funny. I didn't even see the date. Glad you're hanging in there.
Hug
Hope all is well...
Hug
what is L'hermitte's sign?
Hug
How are things going? I can't get to your other blog, so I'm not 'updated'. I just wanted to say hi, see how you are doing, how work is going, and all that stuff. Hope all is well! Hugz!
-
Photos
-
Advertisement -
Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSDiagnosed with RR MS in March of 2005. Had only Optic Neuritis back then, now experiencing L'hermitte's Sign and lesions in the spine.
Treatments
- Avonex Not Working
- Recently switched to Rebif due to activity in the spine. Avonex isn't effective in protecting the spine.
- Baclofen Working / Worked
- Helps me sleep! Almost can't live without it now. I notice a lot more twiching and spasms when I don't take it. Update: Ran out and didn't get a refill for a week and by the end of the week my legs hurt so bad. I really need this stuff!
- Novantrone Too Soon to Tell
- I had my first treatment on Jan 3rd. Two days later I noticed less numbness in my hands. Since then though, no significant changes (which is what I expected). I have been feeling very drained and a little sick - don't know if it is due to the treatment though.
- Rebif Too Soon to Tell
- Neuro considering Novantrone to help the Rebif out. So-far I've gotten worse since being on it - almost 4 months.
