Journal Entry for July 2, 2007
July 2, 2007 1:57pm
Another poem that reminds me of Cameron...> You Have Taught …
CarrieandCam 
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About Me
CarrieandCam
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About Me
I am a single mother of a 6yr.old boy who was recently diagnosed with S.B.Occulta, and tethered cord syndrome. He had surgery to "detether" his spinal cord on April 30, 2007. We spent 3 weeks in the hospital.I am overwhelmed, exhausted & scared. Would like to hear from anyone whose child has had similar issues.He is also struggling with bladder& bowel incontinence. I need someone to talk to who understands what I am going through.
I am a single mother of a 6yr.old boy who was recently diagnosed with S.B.Occulta, and tethered cord syndrome. He had surgery to "detether" his spinal cord on April 30, 2007. We spent 3 weeks in the hospital.I am overwhelmed, exhausted & scared. Would like to hear from anyone whose child has had similar issues.He is also struggling with bladder& bowel incontinence. I need someone to talk to who understands what I am going through.
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Interests
I enjoy spending time with my daughter (14) and my son(6)going to Chuck E. Cheese, bowling, waterpark, and ANY amusement park! I have 2 cats named "Junior" & "Gypsy".
I enjoy spending time with my daughter (14) and my son(6)going to Chuck E. Cheese, bowling, waterpark,
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Journal
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Journal Entry for July 1, 2007
July 1, 2007 4:46pm
I found this poem that reminds me of Cameron...>> God Sent to Me an Angel> by Paul Dammon>> God sent to me an angel,> it …
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Journal Entry for June 27, 2007
June 27, 2007 6:19pm
I am really sad today. I spent all morning going through pictures of my grama. I am making a huge collage of pics. of her with all of the family, and …
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Journal Entry for June 23, 2007
June 23, 2007 9:33pm
I just talked to my grama on the phone tonight. I did not even know if she would be able to respond to me, but I at least wanted mt Aunt to put …
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Journal Entry for June 22, 2007
June 22, 2007 10:23pm
I am feeling really sad right now. My Aunt just called (from N.Y.), and told me that my grama is not doing too well. My Grama, and my entire …
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Hugbook
Ray of Sunshine
Just a little sunshine to brighten your day!
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I hope you and Cam are doing well!
Hug
hey sweetie. sorry i haven't been on either. Joshua has been keeping me very busy and i haven't had a computer. now i can chat whenever. how is Cam doing? i hope u guys are ok. ttl.
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The surgery where they use the gaul bladder works for the pee as well. That surgery is called the mitrophinoff the child would insert a cathater into the opening to empty their bladder. We have not had that much trouble Emma having pee pee accidents because she is cathaderized every three to four hours and she takes medication to help regulate her bladder the medicine is called ditropan. Have they talked to you about what might help your son? We did not cath Emma for the first year and she was always always wet. She had horrible diaper rash. It wasn't until after she started having ongoing urinary tract infections that they started us with a cath routine. It was a little bit of an adjustment but now she does it by herself and it is just the way things work for her.
Present
HAPPY BIRTHDAY TO YOU.......HAPPY BIRTHDAY TO YOU......HAPPY BIRTHDAY DEAR CARRIE, HAPPY BIRTHDAY TO YOU!!!
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Photos
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Support Groups
Close Spina Bifida
Type: spina bifida occultaMy son was recently diagnosed at age 6, of SB occulta and tethered cord syndrome.
Close Arnold-Chiari Malformation
My son was just diagnosed with a 7mm ACM . He is 8 yrs. old.
