Whoah, was that a bus that hit me ????
June 10, 2008 9:55pm
Hi all, I hadmy first of the Rchops chemo on 29th May. It's iithe of June today and I've just had my first day of feeling …
Gypsie
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About Me
Gypsie
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About Me
I was diagnosed with Lupus and Sjogren's Syndrome about 5 years ago though I had symptoms for many years, Sjogren's symptoms for up to 40 years ago. I developed rhumatoid arthritis at that time. Have since, in recent years developed Horners Syndrome and Vasculitis and also have had Cervical Spondulosis for 27 years. Recently I was diagnosed with a Lymphoma that I've had treatment for. The thing I hate most is the Vasculitis because it stops me from wearing all my pretty shoes and I have to wear dolly shoes (with an instep strap, and flat). I've gained 2 stones (28 pounds) and don't seem to be able to lose any of it.
I was diagnosed with Lupus and Sjogren's Syndrome about 5 years ago though I had symptoms for many years, Sjogren's symptoms for up to 40 years ago. I developed rhumatoid arthritis at that time. Have since, in recent years developed Horners Syndrome and Vasculitis and also have had Cervical Spondulosis for 27 years. Recently I was diagnosed with a Lymphoma that I've had treatment for. The thing I hate most is the Vasculitis because it stops me from wearing all my pretty shoes and I have to wear dolly
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Interests
I loved sewing and cross stitch but my eyes have been affected by Horners so can't do that now. I do make all my own greetings cards and have a dolls house that I hope to furnish for my youngest grand daughter. I'm a pushover for new clothes and shoes. My family are my main interest in life. I have 2 daughters, 1 Son and 8 Grandchildren who I adore. I like Formula one racing and am daft about motorcycles. A life member of M.A.G. (Motorcycle Action Group.)
I loved sewing and cross stitch but my eyes have been affected by Horners so can't do that now. I do
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Recent Activity
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Journal
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what a good time...
May 23, 2008 1:28pm
Well, my friends and I took a coach trip to London , stayed overnight in an hotel and went to the Imperial war museum, where I had my picture …
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What a blasted nuicance
May 11, 2008 1:29pm
Well, after almost cutting out dairy foods I suddenly felt a lot better and in a positive frame of mind, then at my regular appointment on …
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D.I.Y.
April 20, 2008 2:16pm
Well I made myself a list for this year, for redecorating my downstairs rooms. March was hallway and stairs. So far I have one and a half …
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Good vibes and good days
April 15, 2008 7:03am
I'd just like to let everyone know that I do read as much of their entrys as I can, I'm limited in the time I can spend on the P.C. due to …
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I'm so sorry for what you are going through, Gypsie. Keep me posted as to how you are doing. My concern and thoughts are with you. love and peace ...
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Hello Gypsie,I enjoyed your message to me.And I would greatly love to keep in touch with you Love.If you dont mind me asking what part of England are you from? I have 2close friends whome I adore that are from England,who live in SanDiego.Your diagnoses is very close to mine.Keeping in close touch with you sounds like the best offer Ive had.Thank-you love.Im deffinatly with you my new friend.
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Thank You Gypsie, I still don't know anything. Brenda
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please read my profile
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Close Lupus
I was diagnosed with rheumatoid arthritis at 22. In recent years I have been diagnosed with Sjogren's Syndrome. (Had it for years),Horners syndrome, Vasculitis and a Lymphoma. Just a few of my problems.
Treatments
- Cellcept Too Soon to Tell
- Not sure yet
- Cyclophosphamide Considering
- Didn't arrest condition
- Plaquenil Not Working
- Not using now
- Prednisone Working / Worked
- Has bewn a great help in alleviating arthritis.
