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new treatment for me Mood
Wednesday, April 9, 2008 | A General Update story
Hello everyone.  I havent written in a few months.  I've really been beside myself.  I had about 4 treatments of doxil.  My CA 125 went up to 1230 then down to 340 but CAT scan showed different.  Disease progession in liver and intestines and throughout abdomen.  Today I start oral cytoxin and intravenus avastan.  Dr. told me that if I did no treatment at all I have 6-12 months to live.  How friggin scary is that!  My thoughts are crazy.  I'm scared.  I'm scared for my husband and family.  This disease is wreaking havoc.  Why isn't anything working?  I have pain in my abdomen and back every day.  I am taking predisone every day and about 3-4 vicodin every day for the pain.  How much more can I take?  I'm so frustrated.  this sucks!!!Yell
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Comments

  1. pixie123777

    I wish there was something I could do to make you feel better and take your mind off all that you are going through right now but know this........WE ARE ALL HERE FOR YOU! Please know that anytime you want to talk please let us know. Even if it's just to vent about the pain. Just know that we are here for you. I know it's easier for me to say but try to keep a positive attitude. You are getting treatment so there is always hope that you will be OK. It's just taking longer then you thought. I wish I was there to give you a big hug.........So just close your eyes and feel that I am giving one to you right now.
    Write again soon my friend and let us know how you are doing.
    XOXOXOXOXOXOXOXOXOXOXOXOXO
    Michelle


    pixie123777

  2. anitaama

    I don't know what to say to you except don't give up the fight. It is not fair what is happening to you. As Michelle said we are all here for you. Lots of love and healing hugs to you.


    anitaama

  3. Halli

    I've just come out of my last chemo fog which I had on 9th.. sorry I didn't read this sooner.. My CA125 isn't coming down as quickly as I would like it to and I have accessed some spiritual healing again.. It really does help.. if not to bring down the CA125.. then it steadies my nerves and gives me some extra energy to cope. It's an extra support and something that I have accessed for myself.. so that I don't feel so much like a victim.. I would recommend it to anyone who is overwhelmed and feels they aren't coping well.. the better we feel the better we are.. Get all the support you can find.. Thanks for letting us know how things are so we can be here for you... Are you gong to have any surgery.. because that can be the most effective course?

    I will be wishing for the best for you as always.... and will be here now till Tuesday after next... Loving hugs toyou and your family xxxxxx


    Halli

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