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liz82881 
I found out today that what I thought was Rheumatoid Arthritis for the last 2 years I found out is Systemic Lupus. The Dr. that I have had since I was 13 up until August of last year did blood work to test for Rheumatoid Arthritis in July of 2005, What I did not know was at that same time he had also tested my ANA level. I guess that it was a high of 160 . My current Dr was confused that I was not aware of this. He could not figure out why my old Dr had not told me because it was something so serious. But at least now I know why I have been having so much pain on a day to day basis. So basically I am looking for a support group online and in my area of Marietta, Ohio. Someone to talk to basically.
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There is so much confusion regarding many of us with Lupus. My ANA was 180 and one doctor said yes I had it. The referring rhuematologist said no...even though I had protein in my urine too. This is a strange, vague disease sometimes. I too am in such pain. I am glad you have a doc who seems pro-active and on top of things! Michelle
mom2three