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MsRose 
To day I am feeling better. Legs are better, facial rash better, joints better, mind is racing ( as anyone who has IV steroids understand).Right leg swelling is unchanged. Going back on regular meds tomorrow. Leg fasicullations are NUTS! I appreciate having your thoughts and prayers as mine are with you as well.
Today I am blue. I am on my 2 nd day of IV pulse therapy and I am very depressed and feel alone. Lupus is in a flare. Myositis this time. Legs are killing me. Feel nervous, anxious yet very sad and alone. My husband tries to be attentive but really he doesnt understand. My rheumatologist has treated me for soooooooooo many years, I think he would be glad to be rid of me. Problem is I dont know where else to go.
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I undestand your frustration so much, i'm just in the beginning stages and can't fathem your suffering, the depression is overwhelming, i have no one, and its hard for your husband or anyone to understand the pain we go through, i know the feeling of just wanting the pain to end, i see a therapyst and am on antidepressents, and for those anxious times i take lorazepan, its worth a try, ask your doc about that, , i'm thinking of you.
susanX
My heart goes out to you.If there's one thing I learned fast it is that our symptoms may very but we all suffer from loneliness.
RhondaLR