What I hate about Lupus
May 7, 2008 7:59am
The Lupus road is too bumpy.....so up and down, just like my feelings.
Some days I wake up and it's like someone (just for a joke) took away …
Progress
55 %
ozangel
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About Me
ozangel
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About Me
47yo Aussie with 2 daughters 23 & 21. Love my nursing career but shift work was a problem for me, especially night duty, makes me sick. Work in Medical Research now which is more manageable. Live in the sunniest state in Australia, seemed like a good idea when we moved here 20 years ago, my love is nature and all the outdoor pursuits, what a cruel irony.
47yo Aussie with 2 daughters 23 & 21. Love my nursing career but shift work was a problem for me, especially night duty, makes me sick. Work in Medical Research now which is more manageable. Live in the sunniest state in Australia, seemed like a good idea when we moved here 20 years ago, my love is nature and all the outdoor pursuits, what a cruel irony.
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Interests
Bushwalking/camping, Kayaking, Fishing, Reading, Nursing, family and looking for more creative outlets indoors.
Bushwalking/camping, Kayaking, Fishing, Reading, Nursing, family and looking for more creative outlets
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Recent Activity
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Journal
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Achey Breaky Heart
March 4, 2008 7:23pm
I am hurting, burning and aching all over - headache, lymph glads sore, muscles cramping - uuurrrrgghh. Been back at work for a month now, …
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Journal Entry for January 31, 2008
January 31, 2008 5:57pm
It's been a while since I posted - been panicking silently about starting work again, 4th Feb, in my permanent job. Have been doing 2 casual …
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Journal Entry for November 9, 2007
November 9, 2007 2:45am
I must be a selfish bitter cow. I've been depressed the last 2 weeks coz my rheumy told me it was crunch time and I had to decide whether to …
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Journal Entry for November 1, 2007
November 1, 2007 7:24pm
I am hurting so much, my body is on fire and my brain is full of water - how's that for a conflict?
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Hugbook
Hug
Hey Tracey.hope ur ok............sending you warm fuzzies from NZ
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Flower
Gooooooood morning!!!.........just got to work...7am over here. I like getting here early as I have a wee bit more energy then. I leave early at the end of day to be at home for my daughter. We have more than lupus in common!!! I was a coronary care nurse for several years before I had my daughter and a wee bit after. I loved it too but I can't imagine being able to do it now..on ya feet for 12 hour shifts!!!! I did a little research nursing (BORING) then when off to do a 3 year masters of science degree specialising in psychotherapy. The idea being that I would eventually work for myself in private practise........then along came lupus. Neitherless once a nurse always a nurse!!!!! Hey you have a great day aye??!!! Take care and be gentle with urself X Lee
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Ray of Sunshine
I was just reading your journal entry from last year............smart girl missing in action!!!!!!!!!!!!!!!! I can soooooo relate I am blond and act like one sometimes!!!!!!!!!! I forget peoples names I go into a room to get something and forget what it was in the smace of a mili second!!!! I wake up each day wondering who I will be today.....the normal bright intelligent energectic self or the slow confused slightly senile self who can only put one foot in front of the other and attract strange looks from my work colleagues like "where the hell is Lee???? who is this alien????? I have learnt to laugh at myself and make a joke of it. I hope u r well and taking good care of urself!!! Hugs from Lee a fellow nurse turned psychotherapist!
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I’m With You
NZ is a lovely place! My sister lives in Brisbane. I would love to visit her but my health holds me back sometimes in terms of traveling. Being an outdoorsy person Nz offers so much. If ur ever over this way let me know. Sending you a big hug!!!! Lee(-:
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Hug
I want to say hang in there and do'nt give up on the things u enjoy.............from a fellow lupy ova the ditch (NZ).............x lee
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Photos
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Support Groups
Close Lupus
47yo Registered Nurse with symptoms for a few years before being diagnosed (officially) on 31/5/07 Symptoms: Photosensitivity (now extreme),Reynaud's Phenomenen, Fevers, Fatigue, Headaches, Arthralgias and Myalgias, Gastrointestinal probs like IBD but notIBD, ?mood alterations, insomnia at times.
Treatments
- Plaquenil Not Working
- I am wondering if it has caused me to be more photosensitive as I used to be able to tolerate some sun prior to starting plaquenil but now can't stand even minutes
Close Food Allergies
Type of allergy: PeanutsInvestigating Lupus related abdo pain, my gastroenterologist now has told me I have Fructose Malabsorption and Lactase deficiency. When you look these topics up though you find that 30-50% of the population has a sugar intolerance. It's noted as a leading cause of depression.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- You do feel better when you have a few days without food triggers. I've had no caffeine, milk, wheat for 2 weeks now and it's incredible. My aches and pains have gone.
- EpiPen Working / Worked
- Only needed when I ingest peanuts and then is a lifesaver. Adrenaline makes you feel weird.
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Groups
