June Newsletter
June 18, 2009 6:59pm
View our June Newsletter here: http://cure4lupus.org/newsletters/newsletter609.htm
Topics Include:
Get Involved Locally,Be On Our Front Page,Walk For …
cure4lupus
10:52pm, December 4, 2008
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About Me
cure4lupus
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About Me
I started Cure4Lupus.org because I wanted other Lupus fighters to have the information I didn’t have when I was going through things for the first time. For instance, there are many websites that will tell you what a Complement Level test is, and what the normal ranges are, but none of them tell how it relates to Lupus. I used to search, and cross reference, and read books, and talk to doctors and anything I could do to piece together what my lab results meant or why my doctor gave me a particular medication, or what they meant when they said terms I had never heard before like Raynaud’s Phenomenon. With the help of my family, friends, and other Lupus patients, Cure4Lupus.org has grown to over 560 pages of valuable Lupus information tailored to be understandable by Lupus fighters. We also feature awareness projects and events, Lupus research and Lupus awareness products and merchandise. We try to focus on supplying Lupus fighters, their families, their friends, and the general public with information not available anywhere else. We also make available hundreds of unique, hard to find, Lupus Awareness Products. We have apparel, jewelry, decorations for your home, car and office, journals, handbags and totes, and much more! Proceeds from the sale of these items go to the Lupus Foundation of America, The Alliance for Lupus Research, and other not for profit Lupus organizations, as well as to supporting and furthering the mission of this website. Visit http://Cure4Lupus.org to learn more. Kendra Isola Lupus Fighter/Owner/Designer
I started Cure4Lupus.org because I wanted other Lupus fighters to have the information I didn’t have when I was going through things for the first time. For instance, there are many websites that will tell you what a Complement Level test is, and what the normal ranges are, but none of them tell how it relates to Lupus. I used to search, and cross reference, and read books, and talk to doctors and anything I could do to piece together what my lab results meant or why my doctor gave me a particular
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Interests
Lupus Awareness
Lupus Awareness
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Recent Activity
June 18
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cure4lupus wrote a journal entry: June Newsletter 6:59pm
View our June Newsletter here: http://cure4lupus.org/newsletters/newsletter609.htmTopics Include:Get…
January 16
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cure4lupus turned 31 12:00am
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Journal
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May Newsletter
May 19, 2009 9:07pm
Our May Newsletter is out: http://cure4lupus.org/newsletters/newsletter509.htm
Topics Include:New BlogsTwitterJoin Our Walk TeamZazzleFinancial …
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March Newsletter
March 10, 2009 5:47pm
http://cure4lupus.org/newsletters/newsletter309.htm
Topics include: Lupus Events & Support Groups, Dancing at the River's Edge, Lupus & …
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February Newsletter
February 11, 2009 11:40pm
http://cure4lupus.org/newsletters/newsletter209.htm
Topics include:Medication WarningsBe Part of our Memory WallAdvocacy Day from HomeNew & …
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January Newsletter
January 18, 2009 6:30pm
http://cure4lupus.org/newsletters/newsletter109.htm
Topics Include: All New Lupus Designs, Advocacy Day 2009, 2009 Calendars, Lupus Research …
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My hugs, and my apologies for not communicating more, my friend. Yes, Lupus mimics a hundred diseases or disorders. I can't deal with a lot of it now due to my own significant fatigue lately. But I have researched it as much as possible, finding the whole subject very overwhelming. But I will pick it up more, when my sick wife improves. Seems I have two very difficult disease processes that are very dangerous in my child and wife, and it pains me deeply to keep struggling as I watch them struggle with no support around here. The doctors I find to be very lacking in compassion, and even very rude too often. So they don't like many questions. It's all very upsetting and makes me feel violent, but I try not to antagonize and make the situation worse. Overall, I have tremendous empathy with you who suffer from it. I have little doubt I may have some lineage from whence this dread genetic propensity derived, and now I'm sorry I ever married and elected to have two children. This is a cruel world, and lupus plus other chronic disease patients get the short end of the stick all too often. It enrages me, but I drive on. I wish you much hope of improvement soon in your own battle, dear heart. Huggs, and much affection, Goliad
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BIG HUG FOR YOU
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Merry Christmas! I hope the holidays treat you well and that you have a wonderful and blessed 2008!
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Support Groups
Close Lupus
http://cure4lupus.org/kendras_story.htm
Treatments
- Cellcept Working / Worked
- has worked very well preserving kidney function reducing prednisone use and with the exception of a case of Shingles, the side effects have been mild and tollerable
- Plaquenil Not Working
- allerigic to it
- Prednisone Working / Worked
- Lots of terrible side effects but it does work well for me
- Hydrocodone Working / Worked
- Lasix Working / Worked
Close Fibromyalgia
http://cure4lupus.org/kendras_story.htm
Treatments
- Cyclobenzaprine Somewhat Helpful
- Makes me stupid for 3 days after I take it.
- Elavil Working / Worked
- Like a charm!
Open Pancreatitis
cure4lupus hasn’t entered any details for this support group.
