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willowm 
7:57pm, September 7, 2008
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I feel really sick today. Just exhausted and I have a headache and am nauseous. I am in a daze because I've been trying Ambien and it makes me into a zombie the day after. Ugh. i can hardly think straight. I feel carsick but I'm not in a vehicle! The days are so LONG when I feel like this. I don't know what to do with myself. Tomorrow I'm going to work at Big Cat--god knows how I'll do that. Luckily it's a Sunday, so I can go slow and won't have to deal with any guests.
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This weekend in Tampa the CFIDS Association sponsored a seminar. I wsa unable to attedn the seminar because it is during my nap time (of course!) but I wen to the meet and greet party the night before. I met Dr Klimas, and got some good news from her. She asked me to be in a study she's doing, where you get thousands of dollars worth of free tests nd medical care. And if you do a study of hers you get put on the top of her waiting list for an appointment as a regular patient. And, SHE TAKES MEDICAID!!!! This is unbelievable. It's the best thing 1've heard in about 5 years. it means making 4 trips to Miami to do the study. Not sure how that will be done--need money and help driving and a place to stay. But I'm hoping my dad can help with that. You have 2 years to make the trips, so i can space them out. God, I hope I can do it. It would be incredible to be a patient of a doctor who knows what they're doing and believes me! These idiots I've seen in Florida so far don't know anything.
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Dear Cathy, What wonderful news!!!!!!!!!! Was happy to see you'd
posted an entry. Working with someone who believes in you and what
you're going through is huge. Hang in there....I know because the
help I've recieved has made all the difference.
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Hi Willow,
Sorry to hear you're low and not doing so hot.
Have you been able to make it to see the new
doc in Miami. Don't want to cast a negative note..
and/but have you ever been tested for lyme? Resaon
I'm asking...I don't know if you have any of the
symptoms and everyone's different. My dr. tested
me 4 yrs. ago..I was positive on the CD57 test.
Have a mild case and have been treated with
homeopathics..plus detox..Was negative on
Igenex...which is the standand test but not
real reliable. Anyway, just passing that
along...should you be with a fairly knowledgable
dr. they may have something to say about this.
They're finding that alot of people who have
chronic fatigue also have lyme...so....
Either way...sending along hugs,,too
Rosa
RosaQ