Journal Entry for November 20, 2009
November 20, 2009 12:39am
Progress
80 %
Goal End Date is Jan 1, 10 36 more days.
aztbear 
4:29pm Yesterday
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About Me
aztbear
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Recent Activity
Recently:
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5 hugs received, 4 hugs given, 3 journal comments, 3 photo uploads, 2 journal posts
Yesterday
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aztbear updated their status 4:29pm
Cant seem to get on a good schedule w/ my sleep...hate mornings,and only...…
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aztbear gave ADDbuster a hug 4:25pm
Thanks...you can do it too!…
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Monday
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aztbear and 2tired2type are now friends 6:25am
Friday
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aztbear updated their status 6:16pm
Hosting a grand opening tonight, and I need to get my a** in gear and get...…
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Journal
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A question...please read& reply.
November 19, 2009 6:41pm
I'm just wondering if anyone with Narcolepsy has the sleep paralysis? If so, do you have pain when it starts and through out the …
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Is there no hope???
November 19, 2009 6:20pm
I hear of others say how great they feel on Adderall, like they can accompish anything, and on top of the world! People pay money to take this …
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Hmmm? IDK
November 12, 2009 5:10pm
I have narcolepsy, yes...this I know. But sometimes I think I have ADD....i get so side tracked, and what was one simple project I was working …
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Hugbook
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High Five
it needs guts and that scares me..........happy for you...........
Hug
Hi, Thanks for the note. I dont get many jokes mostly because i was recently diagnosed. I have had lots of people saying, oh dont fall asleep! before we watch a movie or such. It sure is frustrating though when people think we're just tired. Its so much more than just a litle tired. And 25 years of tired adds up!! haha
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Hug
Hi I know what you mean with "the real him", I am in as place where I say "the real her" came out and like I never thought possible. You had guts............
Flower
Welcome to the group!
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Photos
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Support Groups
Close Narcolepsy
Where do I start??? Was diagnosed when I was 14yrs old, after about 1 yr of testing me for everything you can think of, and before that, being diagnosed with "bizarre phenomenon". I have tried just about all the meds, some worked, then stopped, some didn't at all, and now just using what's working at the moment. I find that this is a very lonely disability, cuz no one understands it! It has affected my life greatly, but it's embarrassing, so I don't talk about it.
Treatments
- Adderall Working / Worked
- I'm on it now, 30mg extended release once a day. w/ a combo of dexedrine...some days it works great, others I need to take extra dexedrine. But no upset stomach, no light headed ness, and no palpitations, like I had w/ ritalin..
- Cylert Not Working
- didn't do anything for me, was on it briefly in high school
- Dexedrine Working / Worked
- taking it now 5mg, 4 tabs, 3 times a day w/ my extended release Adderall. Works ok, way less side effects than ritalin, sometimes one dose is enuf, other times I have to take extra.
- Provigil Not Working
- It made me be awake, but not alert...which is the worst feeling for a narcoleptic. I was completely mentally exhausted, couldn't think right, concentrate, finish tasks, or retain info. But I was physically awake, and it make my night sleep suck! I took it alone, then combined w/ ritalin, didn't like either way.
- Ritalin Not Working
- Stopped working. This was the first med I took, it changed my life, it literally saved me! It worked great , but I had to keep increasing the dose, then it got to the point where no matter how much I took, it didn't help, just made me sick...the side effects were not fun either...palpitations, diarrhea, high startle response, feeling "unresponsive", anxious...
Close Breakups & Divorce
I was in a relationship w/ someone who I thought was my forever...then the real him showed up! Things got bad, I mean really really bad! I stayed as long as I could, hoping it would stop, but it never did. I left him, have my own place, it's been over a year now, and I've made the mistake of doing the back and forth thing...long story short, I need to let go, and move on, and be ok w/ him moving on too. It's hard, cause for so long he was my best friend, that's the hardest thing to let go!
Treatments
- Leave Working / Worked
- It got me out of being controlled and belittled. It gave me freedom that I had forgotten about,lol.
- Support from Friends & Family Working / Worked
- All my friends and family are behind my decision, which is great to know! Controlling and abusive men have a way of manipulating you mind and making you feel like your did something to deserve it, that no one really cares, and that your just being stupid.
- Talking Working / Worked
- Talking helps cause when you hear yourself say certain things, you realize how messed up things really are, and gives you confidence to get through it.
- Time Somewhat Helpful
- It can help, but it can make you go back too...when you start to miss them, and all you think about is the "good times", but then when you do, your quickly reminded about why it didn't work out,lol!
