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About Me
SPAZZIKA
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Recent Activity
November 11
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SPAZZIKA wrote a discussion post in the Dystonia support group: WELCOME TO MY WORLD...VIDEO 8:07pm
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SPAZZIKA updated their status 3:03pm
Spazzalicious…
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SPAZZIKA wrote a discussion post in the Dystonia support group: FUNNIEST DYSTONIA MOMENT... 12:28pm
Living with dystonia is a major challenge and its easy to let depression get the best of you...but then…
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SPAZZIKA gave jonah1 a chocolate 11:46am
November 10
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Moment of Peace
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Thanks
I think you will find the people on this site to be nice, and helpful. Take care,
Angela
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I have cervical dystonia and multiple sclerosis, I have had those for over 18 years, now have spasmodic dysphonia, affects the speech basically destroys it. I know it is difficult to deal with my cervical dystonia, started out very badly. It has gotten better over the years, still jerks occasionally, and the tremors are still there. I know how important it is to have support. I am 56, and all this started when I was 38. I honestly did not know what was going on, I was told it was just my imagination many times. Botox helps some people not so good with me. It is nasty disease and I think everyone that has it hates it. I remember in the beginning I slept a lot, that was the only way to get relief, as the years have passed, I have accepted it to a certain extent, there are days when I want to take it out of my brain, and destroy it, doesn't work though. I hope you have a good doctor, and family to support you and make sure you get the help you need. If you ever want to talk, just write me any time. Take care. Angela
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hi,i also have cervical dystonia,are u on facebook,its easier to chat on there
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Close Dystonia
I am hoping to make friends and receive support from others who also suffer from dystonia
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