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About Me
omons
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About Me
dx'd with multiple sclerosis in jan. of 2000. former touring musician and artist. interested in meeting MS'ers who think outside of the box... i have been on seemingly every MS drug, with the exception of avonex, to NO AVAIL. currently on tysabri and have seen no positive effects. its been a very scary ride! period end.
dx'd with multiple sclerosis in jan. of 2000. former touring musician and artist. interested in meeting MS'ers who think outside of the box... i have been on seemingly every MS drug, with the exception of avonex, to NO AVAIL. currently on tysabri and have seen no positive effects. its been a very scary ride! period end.
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Interests
music, film, writing, botany, social critique
music, film, writing, botany, social critique
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Recent Activity
Recently:
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2 group discussion posts, 1 photo upload
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Journal
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Hugbook
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Photos
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Support Groups
Close Multiple Sclerosis (MS)
Type: Progressive Relapsing MSid like to find LIKE-MINDED multiple sclerosis patients to help make this an easier ride... Because, it's not.
Treatments
- Copaxone Somewhat Helpful
- took for 4 years and suffered multiple attacks. it could have been helpful, but i think positive effects were acheived by positive thoughts and thepower of the human spirit...
- Physical Therapy Working / Worked
- with MS, it is definitely easier to maneuver around with a fit body... as applies to everything, i guess... also, repetition helps with my balance issues...
- Prednisone Working / Worked
- good to treat minor flare-ups in their beginning. also good for coming down off of high doses of solumedrol. insaity may or may not ensue...
- Provigil Working / Worked
- definitely works to help fight fatigue, but has many negative effects for me: sweaty palms, racing mind, overheating, and its quite costly...
- Rebif Not Working
- i did not like the sick feeling the following day. plus', i relapsed...
- Solumedrol Working / Worked
- pretty aweful, though it ALWAYS helps with a debilitating attack. causes extreme mental despair and causes me to get "moon face" and gain weight.
- Swimming Working / Worked
- part of PT. low impact and can be fun too.
- Tysabri Too Soon to Tell
- ive taken 6 infusions as of 11/3/09. it has done nothing. in fact, i have gotten worse... i had SUPER high hopes for this one after hearing some of the wonder-stories from my neuro... looks to be another bummer...
- Marijuana Working / Worked
- helps for just about everything!
Close Vegetarians & Vegans
Type: Vegetarianvegetarian since 1999.
Open Chronic Fatigue Syndrome
MS has me exhausted throughout most of the day. just wanna see what others do to fight fatigue WITHOUT prescription drugs...
Treatments
- Provigil Working / Worked
- it works but its expensive!!!
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Friends






