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  • About Me

    Image of mommy4sofia

    mommy4sofia

    Female, 37
    Chicago, IL, USA
    Member since November 2

    • About Me

      I am a mother of a beautiful 3y/o girl who was recently dx with Ocular Myasthenia Gravis.

      I am a mother of a beautiful 3y/o girl who was recently dx with Ocular Myasthenia Gravis.

  • Recent Activity

    November 8

    • mommy4sofia commented on their journal entry Sofia mia 9:55pm

      This disease is affecting everyone. My husband and I are short with eachother. Sometimes I just don't…  

    November 7

  • Journal

    • Sofia mia

      Mood November 7, 2009 1:29am

      Helpless, frustrated, angry, this  is how I feel about Myasthenia gravis.... My baby Sofia was diagnosed with occular myasthenia gravis sept 22, …

    Read Journal

  • Hugbook

    Give mommy4sofia a hug



    • Hug

      From onceinparadise November 3

      thanks. we all have to help each other with this cause no one person alone can handle this on their own

    • Prayer

      From onceinparadise November 2

      i will keep you and your daughter in my prayers.

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Jan 1, 10 39 more days.
    Current Weight (Lbs)
    140
  • Support Groups

    • Close Myasthenia Gravis

      My 3y/o daughter, Sofia, was diagnosed with Ocular Myasthenia gravis.

      Treatments

      Mestinon Not Working
      Sofia was first put on Mestinon 12mg 3x a day then increased to 18mg 3x a day without improvement.
      Prednisone Too Soon to Tell
      Just started on Prednisone 1week ago.
  • Friends


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