I am so happy to have found this site. When I first got sick all I could find online were medical journals I couldn't understand, or kinda crazy "out there" comments from people. Oddly it wasn't until I reached a "decompensated" cirrhosis stage that I was able to find meaningful information online. Perhaps just adding that word to my searches was the key, perhaps it was the internet intself changing, I don't know. But it's been a long journey to get to this site, and already it has helped tremendously.
Illness (any kind) is such a huge learning curve. For the first while after I was diagnosed I just made jokes about it ... that was my way of dealing with it. Obviously that only worked for so long. My last stay in hospital cured me of that. I didn't find much funny about it at all. My psychologist at the liver clinic helped me get over that coping skill and learn better ones, bless her heart.
Decompensation also spelled some true terror for me. It didn't take me long to figure out everything that might come next was, well, BRUTAL.
I'm not very adept at retaining information and that's why it's nice to be able to look at the different posts and see not only things I now know well, but to learn new information in an easy to digest format.
Thanks to the founders, participants and everyone who is so willing to share their knowledge, their experience, their wisdom and their hearts. I truly appreciate it and look forward over the next while to getting to know some of you.
By the way, I'm a good pray-er but a terrible preacher ... I think that's a good combination (??) ;)
Deb





