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About Me
solly158
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Journal
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Hugbook
Ray of Sunshine
just thought id brighten up your day lol ty for my cholate lmao
Hug
Sarah my dear: it sounds like a myth and you cant even imagine it is a sentence to a lifetime of this .... You have to be able to imagine a better life and see yourself in our mind healed and being well. In your head is where so much of illness and sickness starts in the first place and that's good because it means our minds and our thoughts can get us back to a life of being healthy again. good luck Sarah and be at peace in this life. dennis
Funny Face
Hello there SOLLY.....and a big warm hearty welcome to CLUB FUNNY BONE! Hope YOU enjoy the nonstop fun and laughter day iin and day out! HUGZZZ & MOOZZZ, Willgord.
Moment of Peace
Welcome to the group. I just joined about a week ago. It really helps to have friends who know exactly what you are going thru. Ask questions if ya need to.
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Hug
Is it cold over there now?? I'm in ft. lauderdale florida. u.,s.a. It's about 95 degrees out here every single day and I'm tired of it hahah
You okay with the sleep disorder or not so much help yet? I hope they fix you up or someday, you simply wake up and it's gone .....nice huh??
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Photos
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Support Groups
Close Narcolepsy
I was diagnosed Narcoleptic in 2004, having experienced most of the symptoms since puberty. I'm still finding it hard to deal with, and i'd love to meet and speak with anyone else who has narcolepsy.
Treatments
- Dexedrine Somewhat Helpful
- If i use it as a "once in a while, special occaision" booster, it works reasonably well. Using it on a regular basis leaves me extremely tense, headaches, jaw aches, neck & shoulder aches etc, and utterly wiped out for days after 4 or more days taking it.
- Provigil Not Working
- Did nothing, except dramatically increase the amount of headaches and migraines i suffer from occaisionally.
- Ritalin Not Working
- Didnt feel much effect from this at all.
- Anafranil Somewhat Helpful
- This might sound dreadful but i cant bear to take it. It worked in that it almost got rid of Cataplexy completely. Which is why I really cant cope with taking it. As perverse as i must sound having Cataplexy is the only thing that keeps me convinced that my condition is real and genuinely something i cant controll. Too many years of being convinced I was just a pretty crazy Lazy useless waster...
