disappointed
November 6, 2009 11:48pm
I have been on here for several weeks now and am very frustrated that only one person has responed to my posts. I was hoping to find some …
sarcoidwife 
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About Me
sarcoidwife
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About Me
My husband has had Sarcoid since 1993 it started in his lungs and in the last 4 years it has spread to his bone and bone marrow in his back. He has had back surgery for herniated disk because of the sarcoid and osteoporosis he has from the prednisone he was on with out taking Vitamin D. He had to retire from the Postal Service and is now on SSDI. He is always in pain.
My husband has had Sarcoid since 1993 it started in his lungs and in the last 4 years it has spread to his bone and bone marrow in his back. He has had back surgery for herniated disk because of the sarcoid and osteoporosis he has from the prednisone he was on with out taking Vitamin D. He had to retire from the Postal Service and is now on SSDI. He is always in pain.
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Recent Activity
November 16
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sarcoidwife commented on their journal entry disappointed 7:52pm
Hello, sorry have not written back sooner. Husband having a bad week, doctors on Thrusday and they put…
November 11
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sarcoidwife commented on their journal entry disappointed 6:54pm
deamartin, nice to meet you. I know what you are going through. My husband had to retire from the Post…
October 25
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sarcoidwife and intheblues are now friends 11:28pm
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sarcoidwife joined the Sarcoidosis support group 9:27pm
My husband has sarcoid in the lungs and in the bone and bone marrow in the back and we believe it has…
April 2
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sarcoidwife turned 49 12:00am
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Journal
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Hugbook
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Hug
Journal woman! You can set it on private so just you can see it, or just your friends, or everyone on DS. It's helped me tons. Hey I'll switch moods, JJ called me for 1/2hr straight...for why? To help him add his MOTHER to FB... seriously?
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Kiss
not allowed to feel "horrible"!!!!!!!!!!!!!!!!SO here is a hooker red, super kiss for you!!!! Don't make me send Fatty over there to take care of business :)
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Photos
sarcoidwife hasn’t uploaded any photos yet
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Support Groups
Close Sarcoidosis
My husband has sarcoid in the lungs and in the bone and bone marrow in the back and we believe it has spread to all his bones. Would like to be able to talk to other members that have the same illness
Treatments
- Methotrexate Not Working
- My husband has been on methotrexate for over a year and we are not sure it is working because the Sarcoid has spread to more of his bones.
