Well! A "DougHug". Thanks so much! …
Well! A "DougHug". Thanks so much! My son is twelve, and was officially diagnosed with P.D.D./N.O.S.; I think of it …
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stevensmom 
10:21pm, January 19, 2009
Ok... wellllllllll steven still has the rash so we can not start the anti sezier med because a side effect from it Is a Rash... Go figure huh?
Today i gave them a name of a topical cream he used once before when he had a rash that cleared it up. So I hope they can order it and get it on his skin.
Stomach issue... STILL WAITING! The doc has not decided what he wants to do yet and i dont know what the hell the wait is for... I think somethings wrong with my sons stomach i want it checked. Period.
Yeah he had a colon oscopy year ago, but when the docs said the other day.... that a barrium enema would show different things and it was advised he gets one. now the good doc doesnt know if he wants to do that.
why did he ask the specialist if he already knows what he wants or not wants to do? huh? Im asking him today. and telling them if we do not get an eeg this week like tomorrow? or a stomach test or meds for thoes things? we are out of here friday.
the intensive aba has been awsome, the behavior mangagment has been great I have learned alot. I can apply it at home.
But we are still having aggression we are still having helldowns.
He does seem to calm some faster on his own but the intensity is the same.
We changed his afternoon geodon .
so he gets 20mg am 40 pm
Clonazapam is like long acting ativan 2x a day. which we had to stop to see if his rash was fromt hat, because it was a new med.
sigh...
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still prayin for ya.. hang on in there girl... i hope you get some more answers soon.. xx
bubsmum
I am so praying for ya both hun.....just wish there was some kinda way.....I could make it all better......do more..something to help ya both through this tough time.....but I will continue to pray.....luv ya!
yearsoftears
Love, prayers and many hugs. You are strong and Steven couldn't have a better mom to help him along.
I'm proud of you = ) I can't imagine the hell you are enduring and endure regularly. You are of a different breed. A rare beautiful pearl. I'm not just making that up and saying it cause I've heard it before I just thing that the harder our lives are ...well just like the oyster and pearl story....
love you and keep us updated - we will be here loving and praying for you and Steven
LuvMyCoffee
Glad to know that you and Steven are ok. I know how hard this is for you and I bet you can't wait to be home. KNow that you and Steven are always on my mind. Hugs and love ya both Denise
DeniseDies