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  • About Me

    Image of Ashster

    Ashster

    Female, 19
    USA
    Member since October 21

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Pulsatile Tinnitus

      Mood October 21, 2009 11:11pm

      Before all of this, I had no idea what that word meant. I had never even heard of it in my life; just like most of you reading this. Unfortunately, I …

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  • Hugbook

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    • Good Luck

      From FOLKSTONE October 22

      Omg your realy are going through the mill. I hope you get some positive news soon and some relief of your symptoms. Maggie x

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Apr 22, 10 148 more days.
  • Support Groups

    • Close Pseudotumor Cerebri

      I have had Pseudotumor Cerebri for over a year.

      Treatments

      Topamax Not Working
      Had horrible chest pains had to quit.
      Acetazolamide Not Working
      Dont feel any difference and tingling is very frustrating and wakes me up at night.
    • Close Arrhythmias
      Type: Tachycardia

      I have been having arrythmia for over a year, doctors say it's stress from my underlying condition.

    • Open Obesity

      I have been obese my whole life and now I want to make a change for myself...

    • Open Anxiety

      I've had an anxiety disorder since the age of 15 but ever since I got sick last year with a chronic illness it has gotten worse. My anxiety has caused me to have arrythmia and tachycardia.

      Treatments

      Klonopin Not Working
      Made me feel like a zombie.
      Lexapro Somewhat Helpful
      Calmed me down a bit.
      Positive Thinking Too Soon to Tell
      Valium Working / Worked
      Made me sleepy.
      Xanax Somewhat Helpful
      I only take it when the anxiety is really kicking in.
      Zoloft Not Working
      Only took it for a week.
      Effexor Not Working
      Gave me more anxiety
    • Open Deep Vein Thrombosis (DVT)

      My neurologist highly suspects a blood clot in my left sigmoid sinus veins due to the fact that my last MRV showed no blood flow in that area. My symptoms include:Pulsatile tinnitus, derealization(nothing feels real) head pressure, strong pulsating in head and eyes, visual obscuration and disturbances, ect...I am on daily aspirin treatment for 3 months until my first visit to a neurosurgeon Nov.11th, he is going to have me get a CT scan/contrast to get a clearer picture.

      Treatments

      Aspirin Too Soon to Tell
      Dont feel anything. I am taking 81mg of baby aspirin a day.
    • Open TMJ

      My jaw locks all the time,especially when I yawn, it hurts a lot. I've had this ever since I can remember.

      Treatments

      Mouthguard Not Working
      Very uncomfortable!! Quit using it!!
    • Open Tinnitus

      I've had a rare form of tinnitus, called pulsatile tinnitus for over a year from unknown causes. We have some clues but I am still waiting on a solid answer from my neurologist and neurosurgeon. I haven't had a decent night sleep from hearing my heartbeat as a loud swooshing sound in such a long time!!

      Treatments

      White Noise Not Working
      I could still hear the swoosh swoosh!!
  • Friends


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