Journal Entry for October 17, 2009
October 17, 2009 7:54pm
Just found this site today, and so glad I did. Thank you Google! lol I have been on disability for several years for multiple …
Kadde
12:45am, November 12, 2009
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About Me
Kadde
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About Me
I am a retired nurse, diagnosed with Fibromyalgia and myofacial pain syndrome about 10 years ago. I try to face each day as it comes I'm lucky to have the support of my son and his family. I have other medical problems as well which can make life - well, lets say interesting.
I am a retired nurse, diagnosed with Fibromyalgia and myofacial pain syndrome about 10 years ago. I try to face each day as it comes I'm lucky to have the support of my son and his family. I have other medical problems as well which can make life - well, lets say interesting.
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Interests
Beading, sewing, writing and reading. I like some styles of movies, mostly action and sci fi.
Beading, sewing, writing and reading. I like some styles of movies, mostly action and sci fi.
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Journal
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Hugbook
Good Luck
Is your grandsons spherocytosis severe?
Hug
Happy Monday! BIG, warm hug to my friend Kadde! Hope you're having a wonderful day. Miss talking to you.
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Thanks
Thanks Kadde for the "gentle" hug. It made me smile.
Hug
Welcome to our support family!! This has turned into my little home away from it all!!
Hug
Welcome to the FM Group! Hugs Nancy
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Photos
Kadde hasn’t uploaded any photos yet
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Support Groups
Close Fibromyalgia
Looking for others who share in the fight with fibro and related probs. Struggling to find a new doc in a new area and find a treatment that helps!
Treatments
- 5-HTP Too Soon to Tell
- Just started on this and not taking regular enough to tell if it will help.
- Cymbalta Not Working
- didn't see any difference. not taking now as it cannot be used with 5-htp.
- Elavil Not Working
- Didn't helpl much with the pain and made me a zombie!
- Heat Somewhat Helpful
- Helps with some of my pain and esp with muscle spasms.
- Neurontin Not Working
- Had a bad reaction to it and had to stop taking it.
- Zanaflex Somewhat Helpful
- This helps reduice the frequency of spasms but does not stop them.
- Oxycodone Somewhat Helpful
- It did help with the pain but I didnt like being on narcs. Off them now but with no good replacement.
Close ADHD / ADD
ADHD runs in my family, I know of at least 4 generations so far. It is also in my son's paternal side and in his wife's family! I have never taken meds for it, but my son has and he and his wife are trying to help their kids deak wuthout drugs.
Treatments
Open Myofascial Pain Syndrome
I was diagnosed with MPS about 10 years ago along with Fibromyalgia and fague connective tissue symptoms. I would like to talk withothers who have it.
Treatments
- Massage Somewhat Helpful
- when I flare up my DIL or grandkids will often massage out the affected areas. That does seem to relieve some of the pain.
Open Anemia
I have been dealing with anemia most of my adult life, in part because of an enzyme defect that makes it hard for me to process some B vitamins from plant matter. I have to get these from meat or supplements.
Treatments
- Dietary Modification Working / Worked
- I have to make sure I get enough meat based proteins as well as good green veggies.
- Folic Acid Working / Worked
- I have other medical issues that affect my folic acid levels so I have to supplement here
- Iron Somewhat Helpful
- I do not handle many forms of iron supplements on the market. Childrens vitamins sometimes work.
- Vitamin B6 Working / Worked
- This is included in my diet for more than one reason. But it is one I have to supplement.
Open Migraine Headaches
I have had migraine headaches since I was 15 y.o. I still get them on and off but they have for the most part been eclipsed by a constant headache called hemicrania continua. Since they both occur on the same side and share some symptoms it can be hard to know whick I am dealing with at times!
Treatments
- Avoid Certain Foods / Chemicals Somewhat Helpful
- This can help if you know your triggers. I am sensitive to nitrates.
- Imitrex Working / Worked
- have had it a couple times and it worked fairly well for the migraine. Useless with the hemicrania headache though
- Midrin Working / Worked
- First thing I was ever on. It worked pretty well.
- Naproxen Somewhat Helpful
- Helps some but not as well as the Midrin
Open Back Pain
I have been dealing with constant back pain for many years. I have severe degen joint and disc in my back and neck with mult bulging discs.
Treatments
- Bedrest Somewhat Helpful
- At times my only relief is to stretch out
- Chiropractic Adjustment Somewhat Helpful
- Have used in the past but so denerated now aI'm afraid to try it.
- Heat Somewhat Helpful
- helps relax the back muscles when too tense.
- Hydrocodone Somewhat Helpful
- Have been on these types in the past with fair result. NOt on any now.
- Ibuprofen Somewhat Helpful
- gives mild but not complete relief and helps me move easier
- Naproxen Somewhat Helpful
- help0s a little, does more for my hands than my back.
- Physical Therapy Somewhat Helpful
- Helped for a while but I admit, I'm not good at keeping up with the exercises
- Stretching Not Working
- currently stretching stands a good chance of sending me into muscle spasms.
- TENS Somewhat Helpful
- Used many years ago after a back injury and it did help a bit. May try again if I can get in to a good doctor.
Open Asthma
have had asthma for much of my life. Son and 2 of hid kids also dx with it. Sister just recently dx with it in her late 50's!
Treatments
- Accolate Working / Worked
- was on in past, it helped. going to try to go back on it
- Advair Working / Worked
- Works ok when I can afford to get it
- Albuterol Working / Worked
- it works, using nebulizer as I write this!
- Flovent Working / Worked
- Have used before, now on Advair
- Inhaler Working / Worked
- I don't leave home without it!
- Serevent Working / Worked
- Have used, now on Advair
Open Chronic Pain
I have constant pain from different problems. Degen disc and joint in back, messed up knees, shoulders, arthritis, fibro and mps and weird headache
Treatments
- Cymbalta Working / Worked
- tried briefly, didn't see much change
- Flexeril Working / Worked
- have used before , on zanaflex now
- Heat Working / Worked
- it helps with muscle soreness and stiffness
- Hydrocodone Working / Worked
- Used for a while with some relief, not on now
- Naproxen Working / Worked
- works some, enough to get by
- Oxycodone Working / Worked
- used for a while with some relief but not on now
- Physical Therapy Working / Worked
- hgelps some but hard to stay consistant with the exercises
