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Im a 56 year old female.I was diagnosed with PKD in 1995,my father died that very year from kidney failure due to his Pkd.That was the very first time I had heard of the disease,no one else in the family has it.Thank goodness!!!! The paternal family history was very shakey - because out of 8 brothers and sisters my father was the last living ......also he became an orphan by age 2 and was brought up by a older sister she died of colon cancer in the 1980s. Anyway I am a Respiratory therapist and I recently had to stop working,I am on PD ,it takes 9 hours ,so it was hard to do shift work,plus being exhausted all the time.Also lets face it working in the Hospital around sick people you are going to get sick,because the immune system is affected as well,and I was sick a lot!My Employer was great but...............here I am waiting for my SSD and feeling very low!!!I feel useless.Ironically my health has improved since I quit working,so I know it was best but still......Going from a good income down to so little is so depressing,not to mention feeling useless!And the sad part is I know there are many more people worse off than I am.I know I should volunteer,but I feel so down I doubt if I could do anyone else any good. I would like to hear from anyone with Pkd and also anyone in my situation. Thankyou
Im a 56 year old female.I was diagnosed with PKD in 1995,my father died that very year from kidney failure due to his Pkd.That was the very first time I had heard of the disease,no one else in the family has it.Thank goodness!!!! The paternal family history was very shakey - because out of 8 brothers and sisters my father was the last living ......also he became an orphan by age 2 and was brought up by a older sister she died of colon cancer in the 1980s. Anyway I am a Respiratory therapist and I