I CARE AND I UNDERSTAND.... trials. I have an Angel for a husband and two young adults. They will always be our babies. I know they are adults. Been married 27 years and have had SLE Lupas since I was 20. Didnt know it at the time. At age 45 I found out why I have had 4 strokes, , 3 miscarriages, processing damage, thyroid dying, chemical imbalance and so on; of course adding more diagnoses like hyperthyroid, IBS and who knows whats next. I cant go to all the doctors because I cant afford the medical expenses for evry thing that seems a little off. I do have doctor friends so I talk with them. My husband takes close care of me medically too. I have a medical background and so does my husband. I wish I could put my baby on here too and kids and husband. Oh, well I wanted to join this group because I needed to have people in my life that either have had or are going through some of the things I am. You dont feel so alone that way. My faith HELPS ME A LOT! My heart goes out to anyone struggling in any area. I have home-schooled, had a husband with cancer for 15 years and two childern with medical problems. Yeppers I think I was born to be in the medical field! lolol Really I went to college seriously to be an RN. Hang in there you all and know when times become hard we are always here for you. Im really disabled and need to work because we need the money. Well you will get to know me some! Yep, Im an open book thats my problem.
I CARE AND I UNDERSTAND.... trials. I have an Angel for a husband and two young adults. They will always be our babies. I know they are adults. Been married 27 years and have had SLE Lupas since I was 20. Didnt know it at the time. At age 45 I found out why I have had 4 strokes, , 3 miscarriages, processing damage, thyroid dying, chemical imbalance and so on; of course adding more diagnoses like hyperthyroid, IBS and who knows whats next. I cant go to all the doctors because I cant afford the medical
Travel and explore new places with my husband. Helping people in need with legal papers and just being there for them. Play card games and enjoy the people around me. Spending time with my family, Kayaking, Sailing, Hiking, Biking, Arts and Crafts, and Church. Tell us about yourself: I have had high paying jobs but my family always came first. My work schedule went around their lives. In order for me to be flexible I needed jobs that I could pick and choose. Medical Experience: I have had RN training for three years and then birthed a child that was 5 ¾ months old. During the eight months he was in the ICU, I was taught what to do with all areas of his care. Once he came home with COPD, OCD, Heart Monitors, Oxygen Tanks, Tourettes, and medically disabled in many areas of his fragile body; I had to take care of him and put the training I learned to motion. It’s scary giving a child CPR that only weights 6 pounds at a year old. The only difference was my husband was fighting cancer at the same time and we had so many agencies involved with us that it was a very stressful time. It hasn’t been easy these years but we know God has a plan and we need to take each day as it comes and try to glorify God in the process. I did homeschooling for 9 years and being a secretary for over 250 families and organizing a high risk women’s bible study as an assistant leader. I have a heart to learn. Maybe not as fast as I used to and have some disabilities now; but they won’t slow me down. I will keep learning. Never find out you have family ( owned by several family members and you cant sell them or give them away )mineral rights and you get nothing for them; because then you cant get help with SSI OR DHSH IN THE MEDICAL AREA or any other help. GOD HAS BEEN THE ONE THAT HAS HELPED US WITH EVERYTHING AND WE ARE REALLY BLESSED BUT NOT WITH MONEY.
Travel and explore new places with my husband. Helping people in need with legal papers and just being
9 group discussion posts, 8 hugs given, 4 hugs received, 4 photo uploads, 2 discussion posts
pamiejo777 wrote a discussion post in the Lupus support group: JUST A BIG SPECIAL NOTE TO YOU ALL ! 8:11pm
MAY YOU HAVE A VERY SPECIAL WARM MOMENT ON THANKSGIVING THAT WILL REMIND YOU OF BLESSING THAT HAVE TOUCHED…
pamiejo777 gave FOLKSTONE an I'm with you 8:08pm
THANK YOU FOR YOUR SPECIAL MESSAGES AND TELLING ME EVERYTHING. YOUR A BLESSING.…
pamiejo777 and mar1976 are now friends 8:06pm
pamiejo777 and AmyTx are now friends 7:28pm
pamiejo777 posted a new photo 4:51am
November 23, 2009 7:23am
STARTED JOURNAL NOV. 22ND:
STARTED EUROPIAN DIET SEPT. 13TH 2009 AND IT NOV.22TH.
HAVE GONE FROM 254 TO 227 FAT WEIGHT. GOAL WEIGHT …
Hi Pam
I dont have lupas but I do have DVT.
My symtoms were constant severe pain, the pain was like a realy bad ache, I suffer with bad circulation so I thought it was that. When standing up the pain was aggonising and sometimes felt like cramp. my leg was 3 times bigger than my other leg. Resting and elevating my leg help a little.
If you are worried that you have DVT you must get this checked out, delaying treament can be life threating.
So please if you are concerned get medical help now.
Please let me know how you get on.
Take care Maggie x
Well done Pam, keep it up
. I have to be very careful with my diet too has I havent been very active for 6mths now because of my DVT and my still broken foot.
I used to be a chocoholic but know I just think of it has eatting pure fat.
This works for me, try to change your mind set it works for me.
If not limit your self to a few squares of dark chocolate has an occasional treat.
Best of luck.
Maggie x
Thanks all of you at DS are so special. It is really nice to know that the world has so many that are thoughtful and kind.
Hi Pam, I went to a Halloween Party last night at my auntys,Didnt want to go but glad I did because I enjoyed it. Im paying for it today though. In pain and swelling and discomfort.
I wasnt drunk because I only had 1 wkd.I cant drink because of my medication. Going to take it easy today has per usualy. Got my inlaws coming for tea later today.
I went to bed about 11.45pm last night. I live in uk ( England) so I think this site is in America,s time lol.
Take Care Maggie xxx
SLE LUPAS,IBS , THYROID DISORDER, ANXIETY DISORDER, DEPRESSION, RA, SHORT TERM MEMORY LOSS FROM ATERIAL DYSECTIONS, PROCEESSING DAMAGE. FOUND OUT OCT 2009. LOW INCOME AND NEED HELP AND INFORMATION ABOUT INR MONITORS
