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  • About Me

    Image of carp05

    carp05

    Female, 46
    heath, OH, USA
    Member since April 22, 2007

    • About Me

      i have 20 year old daughter with pkd-no family history-

      i have 20 year old daughter with pkd-no family history-

    • Interests

      my children, family and friends.

      my children, family and friends.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for April 24, 2007

      Mood April 24, 2007 9:27am

      not much to write at this point. our 20 years old daughter has pkd out of the blue. no family history. cant find a dr that we really like. keep …

    Read Journal

  • Hugbook

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    • Prayer

      From deejay1234 June 11

      Hello,I am sorry to hear about your family diagnosis. My 30 year old daughter, my 21 year old son and myself have pkd. I would like to know how your husband is doing in the Tolvaptan study. How long has he been in it?

    • I’m With You

      From md17 May 6, 2008

      Hi! I just joined this group, and saw your post saying that your 20 year old daughter has PKD. My daughter was diagnosed last year, and already has many cysts, and her kidneys are enlarged too. After my daughter was diagnosed, my husband was diagnosed at the age of 49. He is currently in the Tolvaptan study. I would love to talk. Please feel free to email me at mloren01@gmail.com Looking forward to hearing from you!!!

    • Prayer

      From heathersmom August 25, 2007

      I was reading what you wrote on the PKD site and thought I should send you a hug and a prayer.

    • Prayer

      From Patti44 August 7, 2007

      My thoughts and prayers are with you and your daughter while you go through these hard times. Once you succeed things will get better for both of you.

    • Hug

      From dippy May 11, 2007

      Hi, I know what its like when there is no family history. If there is anything I can do let me know. I'm still learning myself, but its still good just to have someone to talk to.

    Read Hugbook

  • Support Groups

    • Close Polycystic Kidney Disease (PKD)

      my 20 year old daughter has been recently diagnosed with pkd and NO family history

      Treatments

      Micardis Working / Worked
      we are still staying hopeful. her kidney function is normal at this time but kidneys are enlarged/innumerable cysts/flank pain. we are starting her better nutrtion
      Micardis Working / Worked
      trying to accept the diagnosis. it's still sinking in
    • Close High Blood Pressure

      20 year old daughter has pkd high bp goes with it

      Treatments

      Micardis Working / Worked
  • Friends


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