Endo Story "It's not in our heads"
March 19, 2009 9:32pm
A letter to our Friends:
Dear Parents, Partners, Friends, Families, Employers & Doctors:
We have spent the last years of our lives apologizing …
jazcankey
5:56pm, October 18, 2009
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About Me
jazcankey
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About Me
I'm a Recreation Assistant for the city, working with kids with disabilities. I was a full time student with a 3.5 G.P.A until endometriosis took over my ability to continue on with a full school schedule. Once I find a treatment that works for me I would love to continue with my studies and be a special education teacher so I can continue helping kids with learning and behavioral disabilities. I have been married for 3 years to a wonderful man who has been helping me through my stuggles with endometriosis. I also have 3 wonderful dogs that are good at uplifting me when I am down and out. I am 27 weeks pregnant with my first child after years of infertility problems and am expecting my baby boy in december.
I'm a Recreation Assistant for the city, working with kids with disabilities. I was a full time student with a 3.5 G.P.A until endometriosis took over my ability to continue on with a full school schedule. Once I find a treatment that works for me I would love to continue with my studies and be a special education teacher so I can continue helping kids with learning and behavioral disabilities. I have been married for 3 years to a wonderful man who has been helping me through my stuggles with endometriosis.
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Interests
Finding relief to my pain. Getting my life back on track. Helping out the youth in my community.
Finding relief to my pain. Getting my life back on track. Helping out the youth in my community.
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Journal
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HOW ARE YOU DOING? CARRI ANN
Prayer
May God bless you and keep you in perfect peace. Here are some encouraging healing bible verses to uplift you. Remember, faith moves mountains and you can get through anything in the name of Jesus.
John 3:16
For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.
Exodus 23:25
And ye shall serve the LORD your God, and he shall bless thy bread, and thy water; and I will take sickness away from the midst of thee.
Psalms 6:2
Have mercy upon me, O LORD; for I am weak: O LORD, heal me; for my bones are vexed.
Psalm 103:3-4
Who forgiveth all thine iniquities; who healeth all thy diseases; Who redeemeth thy life from destruction; who crowneth thee with lovingkindness and tender mercies.
Isaiah 53:5
But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed.
Matthew 4:23
And Jesus went about all Galilee, teaching in their synagogues, and preaching the gospel of the kingdom, and healing all manner of sickness and all manner of disease among the people.
Jeremiah 17:14
Heal me, O LORD, and I shall be healed; save me, and I shall be saved: for thou art my praise.
Matthew 8:14-17
And when Jesus was come into Peter's house, he saw his wife's mother laid, and sick of a fever. And he touched her hand, and the fever left her: and she arose, and ministered unto them. When the even was come, they brought unto him many that were possessed with devils: and he cast out the spirits with his word, and healed all that were sick: That it might be fulfilled which was spoken by Esaias the prophet, saying, Himself took our infirmities, and bare our sicknesses.
Prayer
No prob, its frigtening at first, but the more information you gather, the easier it becomes. This forum helps :-)
Rainbow
I'm here for you!
I’m With You
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Photos
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Support Groups
Close Endometriosis
I was having severe pelvic pain for 3 yrs. that seem to get worst every month,I talked my doctor into doing a Laparoscopy which showed I had moderate endo. After the surgery I had become worst and was put on a 3 month shot of lupron which put me in the hospital for 2 day because of the shock I went into from the pain. I decided not to continue the treatment and now 1 year after the lupron my endo has gotten worst and I have acquired more symptoms. I'm praying for solution to getting relief.
Treatments
- Extended-Cycle Birth Control Not Working
- Made me sick, took it's for 6 months before I was diagnosed with endo. It didn't help.
- Lupron Not Working
- I'm 3 months into my lupron treatment, I'm still having heavy cycles and pain.
- Surgery Not Working
- Had surgery in December 2006, was in and out of the hospital for severe pain, started Lupron treatment, did not ease my pain. Discontinued treatment after the 3 month shot had ended.
Close Chronic Pain
Treatments
- Heat Not Working
- Pain seems to get worse.
- Hydrocodone Somewhat Helpful
- Bad side effects. Servere nausea and constipation
- Meditation Somewhat Helpful
- Kinda work when I'm waiting hours in the ER in servere pain. It's the only way I can keep sane until I see a doctore.
- Morphine Working / Worked
- Only work when I am in moderate pain.
- Naproxen Somewhat Helpful
- Took it before I was diagnoised with Endo. Worked at the beginning and stopped.
- Oxycodone Working / Worked
- Dr. gave it to me last time I went to the ER. Worked, but made me sick so I stopped taking it.
Open Asthma
Have asthma all my life. Was very severe when I was little, I stayed in the hospital most of my first year. The older I got the better it has gotten except for when I have a bad cold. It had limited my ability to be very active in physical activity because of the short expansion of my lungs but I really can't complain. I'm just thankful it's not as bad as it was when I was a kid.
Treatments
Open Hearing Loss & Deafness
I was born with 100% hearing loss in my right ear and 70% hearing loss in my left. They did not realize it until I was 4 years old because of a speech impairment. They found that it was fluid in my ears so they doctors but tubes in my ears to drain the fluid with helped my hearing and speech dramatically. Recently I realize I had trouble hearing again so I had went in for a hearing test earlier this year and found that I was loosing my hearing again. 25% in my right ear and 10% in my left.
Treatments
- Ear Tubes Working / Worked
- Got them but in my ears when I was a kid, worked dramatically.
Open High Blood Pressure
I was diagnosed with hypertention this year. I was hereditary. I got it from my dad who has servere hypertention. It has effected my eye sight plenty of time. I have become dizzy and had blackout off and on. No matter what I do I can't keep it 100% stable. My endometriosis illness has effected my hypertention constantly because of all the pain I be in.
Open Infertility
Type: EndometriosisBecause of my endometriosis I am unable to conceive naturally. Me and my husband has tried for 3 year and were told by our infertility specialist that the only way we can have children is through IVF treatment (which our chances are still slim to none). Also my husband has his own set of infertility problems too so adoption is our only guaranteed option.
Treatments
- Clomid Working / Worked
- Induced ovulation and made my cycle regular,
- HSG (Hysterosalpingography) Not Working
- painful
- Lupron Not Working
- Made me sick, used to help endo.
Open Polycystic Ovarian Syndrome (PCOS)
I was diagnosed with PCOS today. I always knew I had it but, I kinda put it on the back burner because I was have severe pain from my endometriosis.
Treatments
- Clomid Working / Worked
Open Lupus
I was tested postive for lupus by accident. My doctor was doing different test on me for carpal tunnel syndrome and my blood test came back positive for lupus so I was quickly referred to a specialist who did more test and found that I had the anti bodies but not the active disease. It's been a little more than a year since I was told I had the anti bodies and since then I have continued to have pain in my joints which had originally started in my wrist and fingers. Unfortunatly my specialist refuse to treat me because she says the disease is not active so I'm stuck trying to figure out what to do next on my own. I'm hoping to talk to people with lupus to get a better understanding of the disease and if I should be tested again by a different doctor.
Open Pancreatitis
October of 06 my doctor removed my gallbladder because it didn't work. I had to go through hell in order for them to even start running test on me. It wasn't until I got real sick that they ran the test and about 8 month later they found out what was wrong. or so they thought. Months after the surgery the pain has came back full force and now it is mostly in the area of the pancreas. I have never had a diagnosis of pancreatitis but I do have all the symptoms.
Open Interstitial Cystitis (IC)
Just found out I had this yesterday (Jan. 29, 2008), just another problem to add to my list, I have been checked by three different urologist before they comfirmed this diagnosis. Because it's symptoms mirrors bladder endometriosis, the urologist will be checking with a scope during my upcoming Laparoscopy surgery for my endometriosis. I plan on doing all that I can to get my IC under control.
Treatments
- Neurontin Too Soon to Tell
- These meds is to help with my nerves and severe spasms in the uterus and bladder in hopes that this will help relieve some of the pain.
Open Pregnancy
I found out yesterday that I am on my 5th week of pregnancy. I am shocked and was told for years I would never be able to concieve because of all my ailments. God has blessed me with a angel that is growning inside of me and has helped with my chronic pain tremendously. I'm due december 22nd
Treatments
- Folic Acid Working / Worked
- Iron Somewhat Helpful
- Still low of iron by taking with lots of water and also eating food with iron in it to compensate for the low iron.
Open Crohn's Disease & Ulcerative Colitis
might have crohn's but havent' been diagnosed, have a lot of the symptom, pay for a diagnosis soon so i can't be on the road to recovery
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