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Close Charcot-Marie-Tooth Disease

Hi, my name is Renae and I was diagnosed with cmt as a child. don't know who in my family had cmt, guessing it skipped a generation. I have a master degree in social work and currently work in a acute rehab center. I have had about 14 cmt related surgeries and will likely require additional ones (ortho related). Hoping to communicate with others who share similiar experiences related to cmt.