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I have been frustrated and scared wondering what my "black outs" were about for the past 2-3 years (that is when I remember them starting). I will be walking along or stand up and black out. Now I was taught by my parents that that is normal. But the past two to three years I have been scared b/c they will happen even if I stand up slowly and carefully, or even when I am just walking along. I'm also tired the whole day and they happen the whole day for a couple of days. I am frustrated because my family already thinks I am a freak because I follow a special gluten free diet that helps my irritable bowel. My boyfriend thinks I am making my illnesses up. Now I am glad that I finally caught on to the fact that these are petit mal seizures and I believe my trigger is sleep deprivation because I have noticed very carefully this weekend that I stayed up late for the first time in a long time and they are really bad and frequent at the moment. I told my boyfriend and he said, I do that too sometimes that is normal. You make this stuff up. It is because you don't eat real food. Now I am not trying to be a whiny person and talk about my relationship issues what I really want is some support and to just talk about this epilepsy. But I know we all have relationships and they all have their problems and I just needed to vent about that.
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Comments

  1. mechellebelle

    I think everyone will illness goes thru this in some way. I'm not at all playing it down, but rather saying that there are loads of us who understand this! I am sorry you are going thru such a rough time and on top of that have people tell you they don't believe you. I remember when I finally got my hubby to understand: I'd been in pain for a few months and one day I started screaming and crying at the same time blubbering how he didn't get it: REAL PAIN!!!!!!!!!!!!!!!!!!!!!!!!!! and he finally got it, well, as much as a well person can. I try to eat a diet that is bizarre to most people, but works well for my lupus, and others think I am a freak or trying to get attn for it. Huh. I'd really rather be eating their fries and cheeseburgers, so, no, folks, we aren't doing this for attention, it's for health! Hang in there. keep to the things that your spirit says is the right thing to do. I just had a blackout the other night. First one. very scary. I hope you feel better soon!


    mechellebelle

  2. ammc

    i completely understand!! but i also think that sleep has a lot to do with your blackouts...rest as much as possible if you're having a tired day...and your boyfriend should be more supportive instead of thinking that you are making things up...that's real upsetting!! try having a long talk with him and tell him that you would not make this stuff up and tell him that if you don't follow your diet you could get real sick...i also have to follow a somewhat strict diet or else i get real sick...and sometimes my husband will tell me it's all in my head...but more often than not he knows that it's not he just gets frustrated when i don't eat things...

    i hope you feel better and i hope you take it easy and catch up on your sleep!


    ammc

  3. lizgirl

    My husband had sleep apnea and he blacked out behind the wheel of a truck. He was ok and nobody got hurt thank god! But his doctor sent him for a sleep test. You should have that done because the body goes what is called micro sleeps at any time.

    Also blood sugar drops can cause this too. Both conditions make you very tired in the body. You could control your blood sugar by lowering your carb intake and stay off sugars. Look into hypoglycemia.


    lizgirl

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