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About Me
SBCOOK
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About Me
On Social Security Disability, live with my partner and his mom who we are trying to keep out of nursing home. Have begun to realize at 56 that i have had symptoms since a child, am Christian Buddhist oriented chant helps, allergic or reacted to everything including enbrel, valium is helping have dystonia or the shakes and also neuropathy as complications, music is bliss and healing, am in pain 24 hours a day my best to all.
On Social Security Disability, live with my partner and his mom who we are trying to keep out of nursing home. Have begun to realize at 56 that i have had symptoms since a child, am Christian Buddhist oriented chant helps, allergic or reacted to everything including enbrel, valium is helping have dystonia or the shakes and also neuropathy as complications, music is bliss and healing, am in pain 24 hours a day my best to all.
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Recent Activity
November 7
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SBCOOK gave SPAZZIKA a moment of peace 6:28pm
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SBCOOK gave rita24 a moment of peace 6:26pm
August 1
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SBCOOK turned 56 12:00am
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Journal
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Photos
SBCOOK hasn’t uploaded any photos yet
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Support Groups
Close Ankylosing Spondylitis
They thought it was arthritis and even one rheumatologist said there is absolutely nothing wrong with you, of course i went to otherswho finally proved as and said i am very far along, severe, i have fused all over many times.Each day is a blessing and I am thankful for 5 seconds of relief HA, wish all the best.
Treatments
- Enbrel Working / Worked
- worked as long as i could actually worked longer than most had to stop in 99, enbrel almost killed me went into seizures, I have had side efffects with everything, muscle relaxers, pain relievers can not take aspirin or tylenol but am using a small amount of valium
Close Dystonia
I am here because I am a patient already with ankylosing spondylitis but I have dystonia also and it is very frustrating and looking for others to wish best and share with.
Treatments
- Valium Somewhat Helpful
- 5 mg calms things down well no side effects for me but things are so bad i am now taking everyday
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Friends
