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  • About Me

    Image of onlyafable

    onlyafable

    Female, 28
    Houston, TX, USA
    Member since September 22

    • About Me

      At age 18 I was diagnosed with an aggressive case of MS. I've been on every treatment possible and finally I get one 8K infusion a month. I have no job but I'm lucky enough to get some money from the government and have a husband who doesn't really understand and though Next to Normal isn't about those with MS "You don't know" feels so real to me as in "do you know what it's like to die alive" I am a published writer and an AEA SM.

      At age 18 I was diagnosed with an aggressive case of MS. I've been on every treatment possible and finally I get one 8K infusion a month. I have no job but I'm lucky enough to get some money from the government and have a husband who doesn't really understand and though Next to Normal isn't about those with MS "You don't know" feels so real to me as in "do you know what it's like to die alive" I am a published writer and an AEA SM.

  • Journal

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  • Hugbook

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    • Thumbs Up

      From fxwg19801 Yesterday

      hang in there its all good

    • Thumbs Up

      From twinklee1 September 25

      great you are here. you will find many with problems like yours. hang in there.

      twinks

    • Hug

      From Sibrina September 25

      Glad that you are here and to meet you!

    Read Hugbook

  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Progressive Relapsing MS

      I have had a very aggresive case of MS as of Thanksgiving 1998 and I have always thought that I didn't have to beat MS it would have to beat me but MS is in the lead currently.

      Treatments

      Avonex Somewhat Helpful
      Betaseron Somewhat Helpful
      Copaxone Somewhat Helpful
      Novantrone Somewhat Helpful
      Physical Therapy Somewhat Helpful
      I only got this before I was diagnosed. Luckily the woman named Dawn told me this was not a pinched anything and I should see a neurologist.
      Prednisone Somewhat Helpful
      Rebif Somewhat Helpful
      Swimming Somewhat Helpful
      That's really just low impact workout for when I can't jog in the heat.
      Tysabri Working / Worked
      after everything including chemotherapy this is the most expensive but still the most improvement.
    • Close Obesity

      I have MS and am at an unhealthy weight. Of those two one there is no known cause or cure, the other I can do something about. I hope.

      Treatments

      Alli Not Working
      but did make me gasy
      Elliptical Trainer Somewhat Helpful
      But I can't afford to own one or the membership to gyms that have them
      LA Weight Loss Somewhat Helpful
      still needed more protein in that diet
      Physical Exercise Working / Worked
      That's the P90X I mention below but prior to that I would walk a mile but if it's too hot I can't because of my MS and if it's raining I can't because it's raining
      Slim-Fast Somewhat Helpful
      needed more
      South Beach Diet Working / Worked
      Would have if I could cook
      Swimming Somewhat Helpful
      but I'd always done that cause that is just fun
      Xenical Somewhat Helpful
      It did make my heart beat faster and due to the fact it gave me a dry mouth I got over 8 glasses of water a day but that only meant I needed to get something to help get rid of the water weight
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